#203 — A Conversation with Caitlin Flanagan
Episode Stats
Length
1 hour and 7 minutes
Words per Minute
182.5867
Summary
Caitlin Flanagan joins me to discuss her recent article that was embargoed in the previous episode of the podcast. We talk about her journey to opening up about her breast cancer diagnosis and how it has changed her life and how she has dealt with the aftermath of coming out to the world about her illness. She also talks about the experience of coming forward publicly about her cancer diagnosis, and how that has changed the way she lives her life. She also shares the story of how she came out to her friends and family about her diagnosis and the impact it had on her and her family, and why she chose to speak publicly about it in order to be kinder to herself and the people around her. And of course, there's a lot more to be said about her in this episode, including her new book, "No Picnic for Me". If you haven't read the article yet, go read it, and if you're interested in the process of writing it, then go do so. I bet you'll love it. If not, then you'll want to make sure to listen to the full piece, which is available for free on Amazon Prime and subscribe to the Making Sense Podcast by clicking here. Thank you so much for listening to the podcast, and as always, if you can't afford a subscription, you'll get 100% access to all the great resources mentioned in the episode, no questions asked, you're getting 100% of those requests No Questions Asked No Questions asked, No questions asked No Questions Given. Make sense? - Sam Harris (No questions asked) The Making Sense is a podcast by Sam Harsha, No More than $1,000, No Quarter, No Questions, No Problems asked No More Than That? (Make sense, Yes No Questions No No No, Thank You, Yes Yes No, No Problem, No No Questions Not Asked, No Pointless, No Passage, No Picnic No No Question Asked, Yes, No Object Asked, All Rights Mentioned, No, I'll Do That's Allowed, No Question No, You'll Have a Free Account No Questionsasked, I'm Sorry, I Can't Say So Much More? - She'll Make Sense, I've Got It All I'll Let Me Say It? She'll See You, Will She'll Hear It, Will You Do That, Will I'll See That, She'll Say That, And I'll Tell Me, And Then I'll Have It, And So Will I Can Do That?
Transcript
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welcome to the making sense podcast this is sam harris just a note to say that if you're hearing
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i am here with caitlin flanagan caitlin thanks for coming back on the podcast
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thanks for having me again so um i'll give that dog a moment
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i'll sacrifice a lot for a podcast but probably not your dog
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okay good thank you so caitlin so now people have read the article that was embargoed
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last time around that we couldn't talk about so we should start there but first i should say you
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and i've already spoken about your health before we obviously had before the last podcast so
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we'll talk about it here as well but i can't um feign surprise at uh the ordeal you've been
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going through but let's take the article part first because people obviously should just go
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read it it's this really just wonderfully luminous and wise and witty as i mean this is sort of not a
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surprise with you ever but it all came together on this topic which is revealing you know both your
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current health concerns and the way in which they're compounded by the covid pandemic and it was just all
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you know interesting and beautiful and triggered an outpouring of appreciation on twitter which again
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was totally unsurprising given who you are and how many people i know love you because having done
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now a few podcasts with you it's just absolutely obvious the degree to which you inspire
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love in an audience and this may not be something that was obvious to you but it was
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very obvious to me because i've been on the receiving end of it so i guess my first question is
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was there anything about the reception on twitter and anywhere else you saw it that surprised you
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the more the bigger feeling was embarrassment you know because it's really intimate to open up your
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health issue i mean some people are really comfortable with it and for me it's not something
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obviously that i talk about so it was the first wave of it was i just felt embarrassed
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embarrassed to have laid all this laid this heavy trip on people or to feel that i was getting i don't
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know i don't know i just felt embarrassed but then after about 24 hours as always happens when you come
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out of whatever closet you're in when the minute you come out of it you're like oh what an incredible
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relief because i would be sort of tiptoeing around this many many many times in my work or in what was
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expected or hoped that i could do in terms of sort of making appearances places so it just it's always
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easier to just sit out there just to have told the full any relevant truth once people know it then
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you're not hiding it anymore and it really gotten to the point that i felt like i was hiding my illness
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and that felt really bad well let's uh summarize it for people who haven't read it what is your
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diagnosis and perhaps just track through the stages of its presentation all right i'll tell everybody i
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i bet they'll be super bored and just fast forward over this part of the podcast but for anybody who's
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interested and i should say whatever we're going to say now is no substitute for reading your piece
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because i want that read so please go thank you well so i was a young mom in the sweet spot of i mean
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i was 40 so not a young mom but i had really young kids i had twins who were four years old
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and i had like behind my generation i guess i was just one of these girls who really i didn't ever
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really want a career i mean i thought about teaching school which i did and i thought about writing which
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i do but i really wanted to be a mom i really wanted to be i wanted to be a housewife i didn't know
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the dark side of it but i just thought having kids which will be the best part of my life and then
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when they're little will be the super best part because my parents really hated having adolescent
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daughters and i got i kind of remembered how horrible that was for them but it was no picnic
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for us either but so everything was fine never been sick never thought of myself as sick nobody that i
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knew in our family we don't have a lot of family history but nobody had had cancer breast cancer
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and i went for this like routine checkup mammogram and then it was like well can you just wait a few
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minutes we need to get another film oh sure you know i'm not really my ears aren't like pricking up at
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this and then oh he wants to have a sonogram and two of my closest friends had had to have a sonogram
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after their mammograms and been totally fine so i thought i guess that's what happens when you're in
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your 40s you get the sonogram and then right then and there he said yeah you have cancer
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and and he said and we're doing a biopsy now and he never asked me if he could do a biopsy just i've
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just the things that happen to you and when you're really heavily medicalized it's really hard to assert
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your will again or to even know like because i remember lying there thinking well do and i have a
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say in this but i didn't say anything and then he said like this needle biopsy a little bit painful
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and and then he kept saying you have to prepare yourself you have to prepare yourself it was a friday so it
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would take i don't know till the next week early to get the results of the biopsy i guess it was
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monday but and he just he kept saying he didn't want me to drive you know i got indressed he wanted
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me to see him he wanted me to see him in his office at which point he told me it was aggressive
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very aggressive and and then he said i don't want you to drive and i should call your husband and and i
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just had this animal need to get as far away from him as i could and to contain the information as much
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as i could i just thought i something weird has happened in this building i gotta get out of here
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i gotta not have anybody know about it and so i'm sure i shouldn't have driven i'm sure i was in shock
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and and then my husband called so the guy had called my husband and i'm not blaming the guy
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at all it's just sort of interesting that you start losing your i don't know it's very easy to lose
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your sense of who you really are in this but i'm sure the guy was right to call my husband but i got
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home safely but wait but before before you yeah before we proceed that does strike me as an
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anachronism yeah that does seem like a throwback to the 50s where doctors sort of messaged around
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the woman to the man and in some cases didn't even tell the woman their actual diagnosis
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this seems like a slightly madman era doc you were seeing or does it strike you that way in retrospect
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now at the time you're thinking of so many things that's the last thing you're i remember really like
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oh god damn it because my husband called on the cell phone and saying he knew you know what's i just
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heard from so and so but i think the doctor whom i had really gotten to know he'd helped me with
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another problem earlier i think he was freaked out and i think he was i just think there was a lot of
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very human emotions going back and forth between him and me and i blame him zero percent for either
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of those acts it just was part of the introduction to me of what it's like to have cancer what it's
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like to have a really serious disease where like suddenly you think you've seen things i've had a
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cesarean section i've been up against it you know you haven't been up against it till you get that
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really serious disease and you're in a whole other world and so i got so i had so we turn out stage
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three and i got slammed with the just this kind of chemo i don't think they give it anymore they've
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written books about it's called the red devil i can't remember what it's taxotere maybe it's a just
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a horrible horrible horrible experience to go through that kind of chemo but i had the chemotherapy
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i had the surgery the lumpectomy i had the radiation by a very charming doctor who i later
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heard was kind of in the early stages of dementia but i totally dug him so he got along great he was
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always telling me how beautiful i was and i was like this is the best doctor i've ever seen like
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i'm bald i'm shriveled i'm like is that the first sign of dementia a compliment i think so i think so
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i should have run for the hills but anyways i had a good remission and i was just at that five-year
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point that's kind of hyped up as a significant point and and i had a huge devastating recurrence
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where it was in my liver and my chest wall and my lungs and i thought oh my god i'm really gonna die
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i'm gonna leave these kids you know and how old are your kids at that point they are just about 10
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and so on the one hand i was like okay i got him through to double digits area you know but a kid
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really needs and wants his mom especially a boy i think 13 14 15 up until then they have a very deep
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need for a mom because they're so behind developmentally girls at that point obviously
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girls and mothers etc but i've noticed that boys have a a deep need for mom until kind of that age i was
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like oh i wish i'd gotten them there now give me a little more about your life at that point are you
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now are you still married to your boy's father yes now okay so yeah i don't actually know the
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backstory you guys are still married so oh my gosh yes he's the cancer husband of the year i mean i
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he just you really that's one of the things about everyone's had a crisis and everybody's had a
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tragedy and that's where you really find out yeah what people are made of you know yeah okay well i'm
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very happy about that yes as is everyone listening yes were you at this point working
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full-time as a writer are you still are you at harvard westlake school as a college counselor
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what's your life no no no no i was by then i had quit the school to become a mother took me a year
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and have to get pregnant i had the children and what was it what was i doing well i had just started
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writing i was just writing these articles at the atlantic i just started as a writer and they'd
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given me this chance to write right and they'd liked what i'd written so i'd written more and
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more and then i had written one that caused this huge sensation and i had been given this huge book
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deal and i literally am getting the deal at the same week that i'm finding out like i'm so sick
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this is back at the original diagnosis so anyways i got better i published the book there was a lot of
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press a lot of negative press but then a lot of people who really liked the book but of course i
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ignored them entirely as fools and really trusted everybody who hated more dementia yes exactly
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um so i had done that and i had a contract for the next book and i felt a lot of pressure about that
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but but yeah i was out there in the culture i was doing my thing that i do and getting more and more
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confident in it and then it hit me again and it was so bad because you know you hear like in your lungs
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you know you're just like you see every every bad you guys are i mean you're a bit younger than i am
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but we're kind of in the same range there where we grew up with these like really horrible like tv
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movies of the week and it would always be like gosh my elbow hurts you've got elbow cancer and then
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like the whole rest of the tv movie is the person like losing their hair and dying so so i thought this
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this is so bad and then a nurse in the private practice i was in a really i knew i knew so little
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about cancer when i when we started all this that we just thought you know we asked people for names
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of practices and it just and it was a private practice cedar sinai excellent practice excellent
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doctor i love him to this day but i so i thought oh a private practice that's got to be better than a
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public hospital or a teaching hospital obviously you know if you pay for more for something or if
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your insurance that's really the the hero of this whole thing is i happen to have great insurance or
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my husband's job but it turns out that you don't always have access to everything that you could
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possibly have access to if you're kind of down the line in a private practice they're kind of getting
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the first crack at medications that are being put out there but they're not getting it the way the
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labs are and when you're stage four nobody's going to question what they offer you you know so a
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wonderful nurse took me aside at that private practice and risked his job by closing the door and
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saying i think you should get a second opinion because i'd really trusted him and i asked him what
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should i do and he said i think you should get a second opinion and that was profound maybe we should
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define stage four for people who haven't been through this on any level so you originally had
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breast cancer but now it has metastasized to your your lungs and liver and elsewhere and so stage four
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is just the fact of having metastasized elsewhere in the body from the primary site in most cancers i
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think that's the way the staging works it's certainly the way the staging works in breast cancer
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stage four in most cancers and in breast cancer kind of just means it jumped the fire break
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that you had it contained within just one you know with the within the breast or whatever the primary
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form of cancer was and maybe it's even in the lymph node which was in my case true when i first got it so
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that you really get whomped with the chemo and all that to try to kill it from ever getting into the
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blood at all although it's in a little bit starting to get a little bit but when it breaks the fire you
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know jumps the fire break as i say that's when that cancer has wildly gone through the system
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and is attacking and finding locations to build itself in different parts of the body and that's
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really serious and in my mind i'd always thought and it used to be kind of a pretty soon death sentence
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but someone else i know in los angeles um and if she's listening she'll smile because she'll know who
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she is who knows a lot about cancer she just looked at me said you have to get closer to the science
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you know you have a particular kind of breast cancer it is you know it is marked by the over
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expression of a certain kind of genetic material all of that work is doing being done at ucla and i
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know you have to wait longer to be seen and it's a hassle but that's where you need to go because this
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guy dennis slayman you have her two new breast cancer and he's the guy who's really hacked into that
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so with this new drug herceptin and then with a whole armamentarium that followed that
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so i i got an appointment with one of these brilliant young oncologists in his lab sarah hervitz
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and my last practice it said well we're going to section your liver and take out the part of your
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liver with the cancer in it i was like oh that sounds really bad she was like not at all she had
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so many treatments she said i think this one will be the best we'll give you six treatments six it's
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chemotherapy plus the herceptin plus some other things that were from their armamentarium
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and after three treatments we'll give you a scan and see how it's going and uh you know you go for
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the scan after three treatments that's terrifying but the really terrifying part is going to find the
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result you know getting the answer and we had actually we booked a night actually because they're
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her offices in santa monica and we're far east of there and we just thought okay we're going to book
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a night in an ice hotel because if it's bad news we'll need time to pull ourselves together before
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we see the kids and if it's good news we'll have a nice night in a nice hotel so she walks in and said
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your tumors are gone like there's there's still traces in the blood we have to finish this
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but they were gone and they stayed gone for 11 years of durable remission 11 years and you just think
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i mean if it had been five years earlier the thought that a woman with metastatic breast cancer
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with lesions you know big enough to be biopsied in the or would be like not have a single one of them
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after three treatments of chemotherapy that was much easier than my first chemotherapy yeah and then
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and i was tiptoeing into there's a cohort a very small cohort of women in dennis slayman's
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sort of research and work who doctors are starting to tiptoe around calling them cured
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which you know stage four cancer there's no cure etc etc we're never going to use that word
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but they have gone so long with no remission of any kind or no recurrence rather of any kind that
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they're starting to wonder if they're actually cured of breast cancer and i thought i was going to be in
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that group and then my tumor numbers started going up and sure enough eventually a scan came about a
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year and a half ago or almost two years ago a year and a half ago that i'm once again metastatic so
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it's not good news to find out you have metastatic cancer obviously and it was in my spine that was
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really scary to me because i could just sort of see not being a person who did well in biology but was
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interested in biology i could sort of see a tumor in a soft tissue kind of disappearing it was harder
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for me to think of a tumor in bone disappearing but yeah they do the lesion goes and then the bone
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starts to heal even in someone who's like what am i 58 and i've had all this treatment so my biggest
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issues really are i have from all of this treatment over all these years i have a lot of health issues
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that come from the treatment not from the cancer and it's mostly these issues that now i've been
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taught before they were just my conditions i guess but now they're my underlying conditions it's really
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bad if your worst condition becomes an underlying condition then you know it's like someone just
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layered on another even worse condition so just telling the public to the extent that i have a public
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or any public of people who don't haven't read me at all that i have stage four cancer in a shortish
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essay was going to take a lot of unpacking anyway to explain that this tall subcategory that i've been
00:19:04.760
in and maybe still am in that's very good news relative to bad news and then trying to layer the
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covet on over it it was just very it was like an exposure dream in a way even though it's been a relief
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had you spoken about it or written about it at all because i i had sort of missed it but i got the
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sense that you hadn't been completely in the closet with respect to having gone through the initial
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round of cancer well in my first book in the very epilogue because i wrote it after i'd had
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this first bout of cancer but was now back on my feet i wrote about oh i had other one other thing
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to tell you i had cancer you know and this is what it was like it was just a few pages and then a few
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years after that the oprah magazine asked me to write something about it and i foolishly agreed
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and i just could and something came out that was kind of i don't know i didn't do a good job with
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that and then i thought oh never again will i write about cancer and then what was the uh painful
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response to that oh it wasn't the response it was my feeling that i hadn't done a good job in the essay
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that i hadn't i didn't i didn't like what i'd done but the oprah reading public is not a big overlap
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with the people who often read my i don't know it just was the thing is that it's true that this is
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a very deathy situation and and so people who have no idea that you've been in a deathy situation
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obviously respond thinking you're dying yeah which of course i am as we all are but then that kind of
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makes you look anew at your situation like oh my god this is a really shocking terrible situation and
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then trying to resettle yourself especially in a pandemic where you can't go and see the people you
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can talk to them but i guess you know whenever whenever someone hears about it from the outside of
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me and my family or people who really know us the reaction of the people tell me yeah i've been
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through a lot in 17 years but when you're living your life that's not ever how it feels you know
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it's just you live your life with whatever you know whatever hand of cards you have yeah well
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there's a lot in there that's interesting first i want to flag that uh a deathy situation is a phrase
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i'm going to use now okay it's yours take it it's yours that's one of the windfall profits of this
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episode of the podcast okay okay good you know it is interesting the way in which talking about
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something reifies it just based on the response you get to having spoken about it and then you're
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dealing with the response and often that feels like it concretizes a problem in a way that's not
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entirely representative of the experience of going through the problem right like i guess in microcosm
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i've experienced this where i've this is highly non-analogous but if you i don't know if you have a fight
00:22:04.300
with your spouse right and then a friend catches you right on the on the heels of that and they ask
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how you're doing and you say you just had a you know a fight with your spouse you know then the
00:22:13.760
next time they talk to you they're asking you how it's going you know in the marriage found a good
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lawyer yet right you're like what are you talking about yeah like who's gonna keep the kids right
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but that has no relation to what what you've actually gone through right and so i can imagine there
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can be a kind of amplification that happens when you're now you're dealing with this huge public
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response the other thing that's unique about cancer it seems is just the word the concept of this
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particular illness being unlike any other and this this is still true but i'm sure it was even more true
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17 years ago it's a scary word and it is the quintessence of a deathy situation how has the
00:22:57.560
concept of having cancer influenced the experience of having it in the beginning it was i remember
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thinking that first weekend because i had the appointments friday afternoon and i remember the
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first weekend just thinking i can't incorporate this information i just felt like it was outside of me
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and i had to somehow get it into me you know that it's just you know the cliche that this is
00:23:25.020
something other people get you know we really you know freud we live by convincing ourselves we're
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invulnerable when we're very vulnerable you know somebody's got to get breast cancer i i couldn't take it
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in i just could not take it in and it does seem different from getting a diagnosis of heart disease or
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emphysema or i mean they're obviously bad things to get that kill people
00:23:50.560
but don't have this same charge do you think it's the result of the difference
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or the very common difference in treatment around cancer where you chemotherapy and radiation or
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what you're now picturing and in many cases actually going to experience and so this this is
00:24:07.720
the the one disease you go to war with in a way that you
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don't with say heart disease yeah i think that's a huge part of it for sure and i think that it is
00:24:18.680
again so deathy and that most of the i always felt and i used to say beforehand you know i just kind of
00:24:26.020
looking at you know you always look at obituaries and you read them and i remember thinking yeah the
00:24:31.280
three things i notice over and over are smoking car accidents and cancer they i mean it wasn't it was
00:24:36.960
not a scientific study but i noticed that the things that i tended to be like whenever i would
00:24:42.960
be about to take off on an airplane if i felt frightened at all i say you know it's not smoke
00:24:47.900
you're not smoking you're not this and you're not that you you know numbers are on your side
00:24:51.400
and it's just you know the war on cancer remember nixon had that and it was just that all of these
00:24:58.700
other diseases were sort of falling by the wayside and my mother told me my sister's older than i am so
00:25:04.480
she was a baby in the 1950s and my mother said sitting with the baby in her lap in new york to
00:25:11.480
go and get one of the first kids to get be in the cohorts that got the polio vaccine my mother said
00:25:17.100
she just thought my baby's never gonna have polio my child's like she just it was like such a joyous
00:25:22.960
amazing she couldn't wrap her mind around it because if you had been born in the 20s you knew
00:25:26.900
a lot of people would kids who had gotten polio and a lot of parents whose lives had been just
00:25:31.320
completely you know taken to a terrible place because their kids getting polio and so like all
00:25:36.640
these other diseases seem to be falling by the wayside and yet cancer has stayed with us for so
00:25:42.420
long and we know that it's the one that and i've always been adamant that i'll not be in this
00:25:48.160
situation that you could be treated in such a way that made your life even worse for three months and
00:25:57.100
then you die right after that you know that so it's kind of like this thing that can potentially
00:26:01.920
the treatment can be so horrible and it might not work so it's really kind of a heavy thing to think
00:26:08.600
about yeah although no bravery i can't tell you how many times i've been told in the last 72 hours
00:26:15.640
thank you to anybody who said that to me and many times in my private life how brave i am zero bravery
00:26:21.140
zero zero bravery someone comes to you and they say hey got a choice here you have a life-threatening
00:26:28.740
disease it can kill you in a few months or we could try out this treatment i'm like i'll take the
00:26:34.400
treatment let's give it let's roll the dice here you know i'll take door number two i mean maybe it's a
00:26:40.320
zonk but maybe you know maybe i'll get there so a lot of things i've learned about cancer are like
00:26:46.960
number one how you feel total method like you know if you have a good attitude you know you're
00:26:52.280
going to do better it's a lot of studies on that you can be a total bitch you can be upset you can
00:26:56.220
cry every day it's not going to you know you take the medicine you take the chemotherapy
00:27:00.520
sometimes it works for you sometimes it fails you and you have to try another one you don't have to
00:27:06.980
have a good attitude you don't have to be right with god you don't have to be you know it's nice to
00:27:12.340
be nice to all your caregivers and you will be because they are so great but you don't have to be
00:27:16.240
nice to anybody it's just the chemicals go in this there's a response you know i think probably
00:27:22.720
there's probably more compliance with treatment in people who have a good attitude i mean i've never
00:27:28.940
had a good attitude ever in my life and look at me it's 17 years later so wait a minute are you in
00:27:34.020
the total bitch cohort of this study well there have just been i remember asking somebody who knew
00:27:39.840
about this very early on who studies this and i said i just feel like i have to be so good
00:27:45.660
because i i'm in such a precarious situation she said oh no caitlin she says i have seen the nicest
00:27:52.720
people and you probably know many very good people who died of cancer and i'm like well that's really
00:27:58.740
true and then she said trying to cheer me up and i've known some real bitches who made it and i'm like
00:28:04.400
okay somewhere between total bitch and really nice person but maybe more to the former
00:28:10.360
there that it's irrelevant it's just irrelevant what obviously we know this children get cancer
00:28:17.580
who's punishing them for that you know what have they done nothing it's just it's beyond our knowledge
00:28:24.360
it's it's i mean it's not beyond our knowledge it responds well some cancers respond well to certain
00:28:29.580
kind of of chemotherapies so yeah so yeah so one of the aspects of your essay which i know
00:28:39.040
touched a lot of people is the way in which you discuss reaching these various landmarks by reference
00:28:45.020
to your sons you know their graduation from preschool and elementary school and reserving a hotel suite for
00:28:53.160
their college graduation which now is indefinitely postponed due to covid and just seeing the
00:28:59.960
psychological suffering based on uncertainty which again we all if we have our wits about us
00:29:07.200
should be experiencing in some measure without a cancer diagnosis we're all in a deathy situation
00:29:14.200
as you point out we're not you know no one knows how long they're going to live and therefore
00:29:20.600
we could be magnifying the preciousness of time in this way anyway and i think a fair amount of
00:29:28.620
wisdom is dependent on taking death seriously before you've had any kind of diagnosis but
00:29:36.020
in your case in the case of anyone who gets cancer it sharpens up the story considerably and i know i know
00:29:43.480
that moved me and i'm sure it moved a lot of people how has just thinking in terms of being a mom
00:29:50.320
and seeing you know various hypothetical dates out there on the calendar being the way in which this
00:29:57.900
whole experience has been framed for you well very helpful because it was just i've got a mission and
00:30:07.340
it's not a mission about my life it's a mission about my children's lives and to the extent children
00:30:14.180
can have their mother they want their mother so i just i will i counted my life in two ways by it just
00:30:21.760
so happened that they were in preschool when i was diagnosed and there was you know nowadays there
00:30:28.320
are all these gradual constantly graduations but there was so there's this you know sweet little
00:30:33.200
preschool graduation and everybody was just so happy and bustling and taking their pictures and i you
00:30:39.440
know was in a had no hair i was in a headscarf and i just remember thinking this is going to be the
00:30:44.500
only graduation you're going to get and kindergarten rolls around well they got a graduation and i'm
00:30:49.400
still alive and i made it a few more years and i thought i'm going to make it to elementary school
00:30:54.680
graduation and then i had my recurrence and i thought oh i'm not going to get there but i did well i made
00:31:01.520
it to elementary the years passed i'm like i think i've got high school in the back yep i got it to
00:31:07.660
high school and then i really thought this i had made it to to college and then i had this recurrence
00:31:14.640
halfway through there being in college but i got treatment i did well i like sat on the phone to
00:31:20.900
make the very first reservation allowable for the graduation of this year at kenyon wonderful kenyon
00:31:26.240
college in ohio at the mount vernon grand and then now because of covid you know it's been canceled so
00:31:34.040
like in the movie version of this i have to keep it getting canceled forever so that i can stay alive
00:31:39.540
because the graduation will be the end point that's your your appointment in samara exactly my
00:31:44.860
appointment in camp here exactly but you know what you ask about death two things and how we hold life
00:31:52.020
preciously i remember like 25 years ago do you remember when there was an alaska airline flight that
00:31:57.860
crashed maybe off the coast of santa barbara it was a big crash full of people from la so it was very
00:32:03.980
meaningful touched a lot of people and the weekend edition of the la times after that they had a one
00:32:09.460
pager where they they went and asked different religious leaders what meaning do you make of this
00:32:15.800
what meaning are your followers or does your faith hold for this event and you know some people said
00:32:22.880
there's you know predetermination or there's mystery or life is you know god is has plans that
00:32:28.900
we don't see but the last one was a buddhist and the buddhist said the cause of death is birth and i was
00:32:36.900
like oh yeah like that's really accurate there's one thing we can say for sure that once you're born
00:32:45.640
at some point you're getting out of here you know you're checking out it's temporary but the other
00:32:50.760
thing about how we should be holding our lives in such a tender close way all the time i think
00:32:57.840
that's kind of the lesson of the play our town by thornton wilder is that you can't you know it's kind
00:33:03.060
of a corny play but it's about a girl who kind of comes back to life and realizes how preciously she
00:33:07.520
should be holding and everyone in the room should be holding each moment but you just can't do it even
00:33:13.440
after you've gotten the word about it you if we lived life with the intensity of somebody who's
00:33:19.740
looking at their kids after getting cancer diagnosis we wouldn't be able to to do anything
00:33:23.780
and to some extent we're in such a precarious situation at all times that the only way to deal with
00:33:31.980
how precarious it is is to almost pretend it's not precarious you know i think there's one strand of
00:33:39.220
that kind of wisdom in extremis that we can seize and and maintain at its highest level and i'll grant you
00:33:46.580
that we can't say goodbye to everyone like we're mounting the scaffold every time you know someone
00:33:52.420
who's just leaving to run an errand so there's so there's there's an intensity to uh our awareness of
00:34:00.000
our connectedness to other people that we can't quite maintain but i think we can resolve to not
00:34:08.380
suffer over trivial things the way we would it would be obvious we shouldn't be suffering over those
00:34:14.720
things under the shadow of a cancer diagnosis right right although like maybe someone is kind
00:34:22.220
of a jerk to you and you have cancer you don't have to necessarily think to yourself i must see
00:34:29.020
the humanity in this person because it's like i think you get to still know you still get to have
00:34:34.540
i mean it's very refreshing let me tell you when you're in a deathy situation the minute some small
00:34:39.560
trivial thing bothers you you're like oh what a wonderful sensation you know to just be like
00:34:46.540
annoyed by something god it's excellent okay well speaking of that i i wasn't sure i was going to
00:34:52.640
bring this up but you did have one response on twitter that was just amazing i mean amazing to a
00:34:59.640
degree wasn't it great wasn't it the best thing ever it was for all twitter kind yeah it was glorious but
00:35:07.120
it was so perfectly crafted that it was one of those moments where you think okay this is a
00:35:10.900
simulation we're living in and it's showing it seems because you know this is just too on the nose
00:35:16.760
so you receive a tweet which has since been deleted i think you know oh has it yeah which is
00:35:22.560
i guess maybe shows some scruple no no it shows anxiety yeah it shows anxiety if it had been a
00:35:30.660
lauded tweet it would be the pinned tweet yeah it wasn't based on any scruple
00:35:36.840
i'm sure you're right about that but i'm going to bend over backwards to be charitable to this
00:35:40.820
person but all right and you don't even have a deathy situation i should be actually i was
00:35:45.960
charitable to this person but carry on you were actually you were perfect in your response no i
00:35:50.440
was even more perfect in my response but i'll tell you at the end okay it was private communication
00:35:54.760
oh good i'm sorry i want to hear everything so anyway this woman dr amita kalachandran who is a
00:36:03.620
doctor and a i was surprised and doubly horrified to learn a new york times writer
00:36:10.480
tweeted at you in response to your cancer article in in the atlantic yes but open your eyes to the
00:36:19.280
other karens in the room you're gonna have to explain what karens are to people uh yes but open
00:36:25.140
your eyes to the other karens in the room like caitlin pacific that's your twitter handle her piece was
00:36:29.920
slightly less overt and was likely edited down for tone i read caitlin's cancer story and sincerely
00:36:36.460
hope she uses these last years of her life to learn to be a little bit less racist and an anti-feminist
00:36:43.220
okay so isn't that the best thing ever i mean i'm not saying it in like a badass way it's just
00:36:50.540
if we just needed any evidence that i'm sure if she met me she wouldn't have said that but that
00:36:58.160
twitter is just this kind of this place where you float all these trial balloons you know
00:37:03.740
and and sometimes and they're kind of meaningless you know they're just absolutely meaningless and
00:37:11.880
even as i saw it i thought i knew there'd be a ghoulish response by from somebody because you're
00:37:17.700
always hearing about you know how in um the murders in the the elementary school in connecticut
00:37:24.080
sandy hook yeah and there's this whole branch of thinking that they were not killed and it was a
00:37:29.800
simulation and parents can't even go to their children's graves which was even the phrase children's
00:37:35.940
graves is so obscene so you know that it's a big country with a lot of people but i didn't think it
00:37:40.980
would be somebody who is a physician it writes for the new york times occasionally and the big path
00:37:50.640
the other really horrible discovery was that she wrote her first thing on her own twitter site was
00:37:56.900
here's my first article for the atlantic yeah which two weeks ago she wrote for the atlantic and i was
00:38:02.060
like oh is there and then also mindfulness mindfulness is one of her main passions which
00:38:07.840
was fantastic for my brain i felt like the only thing i was gonna find like what else is who like
00:38:12.760
and she slept with your husband you know it's like what it's like what else has this woman done to me
00:38:18.480
so that it just became kind of droll you know there was nothing but drollery to be had well so i i'm
00:38:26.620
less interested in singling her out for abuse than in flagging what was so interesting about seeing this
00:38:33.820
tweet for me but first of all my obviously i feel very protective of you and as did many people following
00:38:41.460
you and so the response from twitter you know collectively was just analogous to i mean this
00:38:48.600
will date me and and you perhaps but you do you remember the film silkwood with meryl street yeah
00:38:53.840
okay so you're telling me that that's not a current movie snap out of it sam half of our audience
00:38:59.700
will have never heard of this on any level but there's a scene where she's leaving the reactor and
00:39:05.420
sets off the the radiation alarm right and everything goes into just emergency mode and she gets that
00:39:11.460
a horrific shower with the you know the bristle brushes and it's like everyone following you on
00:39:17.100
twitter just had that reaction it was just oh my god this is the most toxic despicable hot take
00:39:23.920
possible and people were fairly modulated in in how how much they slammed her but i mean the one thing
00:39:32.040
that could be said in her defense is she couldn't have been referring to your cancer article for having
00:39:37.620
been edited down for tone she must have been referring to some other piece that she thought
00:39:41.880
oh oh well this is the thing so i published a long piece about megan markle about two months ago
00:39:50.120
and it was a it was a very positive megan mark it was sort of saying explicitly she's the best thing
00:39:56.520
that ever happened to the royal family you know it's a multicultural britain and that's an all-white
00:40:01.280
balcony up there and really talked about what she had been through and ultimately ultimately decided
00:40:08.440
that that the queen of england is really an admirable person because she is someone who just no matter what
00:40:14.720
has put her own desires last and what she perceives to be the country's desire first and so at the time
00:40:20.780
of that article there was a perception that it was motivated by racial animus and i was really
00:40:27.960
interested and i was what i sort of engaged with people i said what is it that you find here that's
00:40:33.940
racial animus and they would say you never said this you never said this you never said this you said
00:40:38.460
this you said this you said this and i said i did say all the things you thought i should say i never
00:40:43.240
said any of the things you thought i shouldn't have said and then i started replying to the twitters
00:40:48.040
with the tweets about it with lines directly from the article itself so that they would see that
00:40:54.220
i think that they just saw the article and that it was about megan and they're very protective of
00:41:00.440
megan which i certainly understand because when i was young i was very protective of princess diana
00:41:04.180
who uh whatever but so that had been kind of what what she was responding to for sure was this two
00:41:12.480
month old megan markle piece so a karen and a becky i don't know what happened to becky i don't know
00:41:17.460
if karen killed becky and now karen is ascendant or if becky and karen are like cousins and like
00:41:25.480
kind of like midge and barbie where there's some slight distinction but these are middle-aged white
00:41:33.080
women who are maybe any age woman maybe karen is the middle-aged one and becky's the younger sister
00:41:39.900
i don't know but they're clueless white women whose casual expectation of privilege which they
00:41:48.680
wouldn't even think of as privilege in the world comes at tremendous cost to other people and to in
00:41:54.440
particular to african-american women and i think they have the people who believe in a becky karen
00:41:59.680
continuum i would say they're absolutely right about that i have no argument have seen it many times and
00:42:05.560
i wrote 15 years ago a long cover story was that really the first story in a big national magazine
00:42:12.800
that really said at length though what we think of as a women's movement is feminism has been tremendous
00:42:19.520
gains for wealthy white women and and not only has it been far fewer gains for women of color
00:42:26.240
and poor women but in fact white women have leveraged you know rich white women have successful
00:42:32.740
professional white women have leveraged their gains on the exploitation of darker skinned women so i'm
00:42:38.780
really i agree with them about a lot of that but she was dead wrong about this essay and then and then
00:42:46.500
you would sort of think but not only wrong about the essay she seemed to be suggesting that that the
00:42:51.680
transgressions were all the more conspicuous for their absence right it had been likely edited down
00:42:57.280
for tone so now we have to deal with the dog of racism that doesn't bark right it's incredible and
00:43:03.420
the thing that i think provokes such delight in people certainly in me is that this was a crystallization
00:43:10.820
of the problem that we've you know we've been commenting on for now years but the way in which
00:43:15.820
the antecedent good intentions that get organized into wokeness become a kind of mental disorder
00:43:24.840
right i mean this is just such a bad take at this moment
00:43:34.520
and again the fact that she's a new york times writer is
00:43:39.000
i mean she's she's written i don't know six or seven pieces for them and that's enough to call her a new york times writer
00:43:44.020
for sure it compounds the horror of this i mean honestly if she were just a doctor i'm not sure
00:43:49.200
i'd be inclined to even name her in our discussion here but she has a journalistic responsibility not
00:43:55.000
to be this clueless beyond the hippocratic oath of a doctor you know you could imagine
00:44:00.320
a doctor who uh just doesn't know how social media should work but you know that's not the case here
00:44:06.460
upon reading that how much of your brain's real estate was given over to being
00:44:12.320
offended or annoyed and how much of it was just pure delight i will be honest that in the moment
00:44:20.000
it was extremely painful yeah it was and uh i always remember this great routine nz's ansari had
00:44:28.560
where he said you know he scrolling through you know his tweets or whatever and there was some young
00:44:34.340
woman who said i just love aziz ansari and he said she just assumed that like i would never find that
00:44:40.560
tweet and he's like of course i found the tweet that's all i do i'm a comedian i sit home looking
00:44:43.920
at twitter and then i go to work at night so it's sort of like a lot of times people tweet things out
00:44:48.620
assuming that the other person won't see them or maybe won't react to them as a human being in a
00:44:56.480
sense and it was such a shocking thing it was so shocking well the fact that she's the remaining
00:45:05.620
years and yeah first place it was a lie to say i sincerely hope she spends her remaining years so
00:45:12.280
the conflict the idea is like okay she has decided that i am anti-feminist and a racist and i'm going
00:45:18.320
to spend my few remaining years which she's done she's you know giving me a prognosis now and then
00:45:24.020
when i am a perfect vehicle of cleanliness i can die like there won't even be like that i can bring
00:45:30.140
this out to the world you know it's just that i must prepare for death by cleansing myself of sins
00:45:37.660
that she says i have but cannot prove that i have right which were all the more evident by their
00:45:44.320
absence in your article because you had been so successfully edited right yeah i mean the fact that
00:45:49.740
she's a doctor i mean there's there's something truly vile about a doctor playing the prognosis card
00:45:58.880
in some way to dunk on you to make a social justice point that is obviously an error i mean it's just
00:46:05.420
the fact that this is what's so fucking vile about this the fact that the social justice triumphalism
00:46:12.940
could co-opt the hippocratic oath the role of a doctor in talking responsibly about about cancer
00:46:21.160
a cancer diagnosis and all of the suffering and uncertainty and sheer chaos that is in that bag when you open it
00:46:28.880
that's what i think everyone found so despicable and i think rightly so and so i mean she's deleted
00:46:34.960
the tweet you know for reasons that are i'm sure self-serving it would be nice for her to actually
00:46:40.360
apologize to you let's pivot to that because for me it's interesting to consider how we repair
00:46:48.380
our public conversation around moments like this because you know it seems to me that there should be
00:46:54.640
some apology adequate to this moment that you and anyone else could accept right it's like for me
00:47:02.980
this is something i've referred to in previous conversations as the the physics of apology i think it's an
00:47:09.540
interesting question to consider what constitutes and what should constitute an adequate apology so you
00:47:17.920
you do something wrong you say something stupid you reveal intentions that were despicable and you think
00:47:25.820
better of it and you actually want to repair the situation and so that really the only instrument available
00:47:32.340
is an apology the closest i can get to it is for an apology to be acceptable it has to be clear
00:47:41.940
what process you went through so that you're no longer the same person who committed the original
00:47:50.460
transgression it's like so for her to successfully apologize to you the apology it would have to
00:47:57.240
reveal that she stands in the same place or at least a relevantly similar place to her original
00:48:06.120
in this case tweet that you and everyone else who found it despicable do she has to be able to say
00:48:13.380
to look back on what she did with more or less the same horror that everyone found appropriate in the
00:48:21.620
moment the tweet was seen and to apologize from that place and it has to be intelligible how a person
00:48:29.980
had that epiphany otherwise people will think they're just faking it they're just trying to get out of
00:48:35.940
hot water and it's not a sincere apology so for an apology to be sincere you have to be able to
00:48:41.880
articulate or at least seemingly display a journey out from the place where you were the the asshole who
00:48:50.320
was so clueless as to say or do this wrong thing and now you're the person who you're able to say i can't
00:48:57.900
believe i did that that's just mortifying i'm so sorry i hope you accept my apology it can only be credible
00:49:04.360
if that journey is plausible well i think a lot about apology i've had to make a lot of apologies
00:49:12.040
in my life because i screw up a lot maybe everybody screws up to some extent but this is for me when i
00:49:18.840
make an apology and number one i have to own every part of the thing that was hurtful about what i did
00:49:25.820
yeah you know so it's not about i and not about a lot of explanation for why i would do that thing
00:49:31.980
it's just that thing must have hurt you in this way and this way and this way and that is grievously
00:49:38.960
wrong and i am extremely sorry and i really want to know if there's anything i can do to in any level
00:49:46.420
repair this you know and so that's to me is a the gold standard for apology now the gold standard for
00:49:54.560
forgiveness there is no gold standard i forgive her a thousand percent and the reason for that
00:50:02.720
isn't that she sent me what i consider a very not good apology and sort of the pantheon of apologies
00:50:08.900
the reason for that is i don't want to be changed to her in anger you know i have to if i don't release
00:50:16.380
her in a complete forgiveness so that i can look forward you know hey she's 31 she's learning
00:50:22.200
she's trying to get her hustle on with this website you know if i don't turn away from that and just say
00:50:27.900
forgiven and mean it even though i can laugh at how cruel it was and how much it hurt me
00:50:34.000
then she'll be i'll be chained to her forever and i can't even really remember her name right now
00:50:38.420
so i totally really legitimately forgive her right oh so so i missed that part of me perhaps you
00:50:45.800
telegraphed that in the last few minutes did she send you an apology that was so i look back on at
00:50:51.820
the i looked back on at the twitter that day and and somebody said that was really cruel and she said
00:50:58.920
i've apologized privately and i that was my only second tweet it's like i didn't see any apology
00:51:04.320
and she said it was sent out at 5 28 p.m as though like i was maligning her about her apology and she
00:51:12.820
had the receipt for it but then i found it she'd sent it to my uh my work email and it was a super
00:51:18.980
long it started with this that in the sense well first place as an editor told me and i was like
00:51:25.620
you're really right about that she's like why a private apology for a public wrong yeah that's the first
00:51:32.220
mistake yeah she said something really terrible about you in public but you didn't apologize for
00:51:37.460
it in public you're sneaking it around this age but i kind of scanned it it was more upsetting to
00:51:43.880
me in many ways and then i thought hold on there's a really good game i rarely play and i can always
00:51:49.520
but it's always a good game to play which is like what if i were an incredibly evolved good person
00:51:56.520
which i'm not yes what would the buddha do exactly they would for accept the apology and not be lying
00:52:04.520
about it they would accept that there the there was some apologetic intention and then my brilliant
00:52:10.140
son patrick whose picture was in that the article you're talking about his picture when he was a
00:52:15.920
little boy the day before i got cancers in there he said and then you would tell her to stay safe
00:52:21.920
in this pandemic and i'm like oh patrick that's the killer right attitude can i have it and then i
00:52:30.280
had to think through that several different ways and i was like yeah i hope she stays safe you know
00:52:34.800
she's a young woman she's a physician she's she did something really hurtful i don't see any evidence
00:52:42.000
that she's i don't know i just hope she does well and i do forgive her completely now forgiveness
00:52:47.860
doesn't mean that you're open to be hurt by someone again you know you don't make yourself
00:52:52.340
vulnerable you're not kumbaya we're not going out for high tea anytime soon ever but it just means
00:52:58.040
i'm not chained to her anymore i got a lot of other enemies to keep chained tightly to my body
00:53:03.520
well you you you think out loud uh rather freely and it that's what makes you such a delightful
00:53:10.020
interlocutor and so no doubt you have provoked people to send tweets of this sort in the past
00:53:16.740
never this bad i've had some bad tweets sent to my way i've had some horrible reviews no one has
00:53:22.800
ever said i hope she spends her remaining years atoning for sins she doesn't have no one's gone
00:53:29.840
that far yeah well i think we all hope that the good doctor spends the remaining years of her life
00:53:36.040
learning to be less sanctimonious i think that would be a good use of it you know she's going to
00:53:40.600
be writing we will like in two days see her new york times piece about how horrible we are to have
00:53:45.440
had this discussion so yeah well i'm trying i'm trying to have it in a way that i will not feel
00:53:50.420
the need to apologize for i mean again i'm not i'm holding her so even on the heels of a bad apology
00:53:58.020
i think there would actually be a way for her to adequately apologize can you apologize for a bad
00:54:04.760
apology can you pull yourself up by the final bootstrap here and get back to zero i mean can you
00:54:11.960
imagine i would not have had that level of self-knowledge when i was her age i'm 58 what if
00:54:18.160
we could get her on the line right now and have a conversation do you do you think there's any way
00:54:23.880
that conversation would go well it would converge on a full reboot of basic human decency and we could
00:54:32.620
all be friends i would start it with someone much higher up on the feeding chain of my enemies than
00:54:39.260
this one i don't see any need to have any any you know i really think that you know maybe you need
00:54:45.520
to be a lot more deathy to really really understand how apology and forgiveness works and to really
00:54:51.780
understand that you know forgiveness releases you and you don't have to do you know you'll see these
00:54:59.300
people who like forgive the killers of a loved one yeah i'm i'm never gonna you know you can spare me
00:55:04.840
from cancer for 500 years i don't think that's going to be happening but i can free myself from
00:55:11.480
her but i don't want to have but part of it is what i'm trying to say is just because you've forgiven
00:55:17.520
someone doesn't mean it's a love-in and it certainly doesn't mean as i always tell people who are in any
00:55:22.780
kind of abusive relationship it doesn't mean you let the abuser back into your life if they haven't shown
00:55:27.380
any possible sign of having changed you know you forgive them but you keep your you keep your
00:55:32.800
fence closed to them yeah you're talking about there's two layers of forgiveness here or two
00:55:38.540
forms i mean so you can forgive somebody who is actually unrepentant who's still a even in the
00:55:46.840
extreme case a danger to you without losing your awareness of the danger they represent you want
00:55:53.920
nothing more to do with them but you can forgive them in some deeper whether the christian model
00:55:58.940
summarizes it or the buddhist what you can notice is to fail to forgive is to grasp some kind of hot
00:56:08.700
coal of suffering which you actually can release on your side i mean you there's no there's no reason
00:56:15.520
to be carrying this person around in your mind with your hatred of them or your your anger or resentment
00:56:20.820
so you can perform that miracle on your side all the while leaving this person out there in the real
00:56:28.980
world completely unchanged what's interesting for me is the warranted forgiveness based on that person's
00:56:36.760
true apology i would love to fully understand what makes it possible for someone who has really
00:56:45.240
wronged another person to become aware of it and apologize and for that apology to be so sincere and
00:56:54.260
real such that genuine friendship between those two people is you know thereafter possible that's the
00:57:01.400
thing we we need more of in our world we also need the former we need people just to be able to put
00:57:06.320
down the burden of their reaction to assholes but well i often talk to young women about because some of our
00:57:13.080
the best minds of our the best minds of our generation or of their generation some of the best minds of the
00:57:17.800
generation that's young now that are female female half of it they just feel for reasons to protect
00:57:24.620
themselves they can't go on any kind of a public platform such as twitter because these hideous hideous things
00:57:33.400
that flow back to them are so poisonous and boy once you once it gets gendered once you have really angry
00:57:40.500
anonymous men saying things to very to young very public women it gets into a place of far far far far beyond
00:57:49.140
what this was about and so i'm always telling them don't worry about that pay no attention it's nothing it's
00:57:56.100
pixels it's somebody else on the other side who's just you know you're as remote to them as like richard nixon
00:58:04.740
who's dead and gone you're just like a public figure they don't think if they're not having any
00:58:09.760
kind of personal communication with you just ignore it so i tried to live into the advice that i always
00:58:17.700
give young women which is just this had a little more bite as i say because she publishes where i publish
00:58:22.600
and because she like i said i have children i want to live for their graduation and she told me to
00:58:28.340
like i should use my remaining years atoning for a sin that she's divined that i have but that was
00:58:34.160
edited out so forget your children just spend the free hours becoming less racist and less anti-feminist
00:58:40.580
yes that's the project and if she thought that the atlantic would public i mean the atlantic began it
00:58:46.320
was founded by abolitionists that thought that they would be oh we have this racist writer let's just
00:58:51.640
lightly edit her for tone is absurd there was another thing i noticed i don't know if this is uh
00:58:58.340
i've thought about this before i don't know if i don't think we've spoken about it this doctor's
00:59:02.820
obviously very focused on the problem of privilege and you know as i looked at her twitter feed after
00:59:10.400
i saw this tweet and there's just a lot of stuff about privilege and wokeness i mean more or less wall
00:59:16.220
to wall but i i couldn't help but notice that she's a very attractive woman right and this is a form of
00:59:25.180
privilege that few of us are talking about but it's it is as real as privilege gets there's just
00:59:32.860
being a beautiful woman or a very handsome man is not nothing in this world and i guess it sort of
00:59:41.100
compounds the irony here but it struck me as a final layer of a lack of awareness i mean if you look
00:59:50.120
like padma lakshmi and you're going on and on about privilege there's a ridiculousness to the project
00:59:56.500
when you think of the advantages that just effortlessly flow to people who are very attractive
01:00:04.620
in our culture you have to at least take the wokeness game a little more lightly than you would
01:00:10.620
otherwise how do you think of that form of privilege in our society well first place if there's anything in
01:00:19.860
the world she is not unaware of it would be her beauty i would say just the way she displays
01:00:24.280
herself rightly so beautiful young woman there's a wonderful english expression that at age 50
01:00:30.420
you get the face you deserved you know like that it is going through life as a beautiful or pretty or
01:00:38.200
attractive young woman oh man a lot of doors fly open and and you're intensely aware that there's it's
01:00:46.040
going to stop but then you kind of charter over into you know confused older older lady and they open
01:00:51.120
the doors too so um maybe it's not as dire but for sure i would say more to the point is that she's
01:00:58.980
canadian and she's presenting herself as a sufferer of the ancient wrongs against people of color in this
01:01:09.080
nation which is just a very odd yeah i missed that point odd part of it but i don't even want to
01:01:17.020
oh let's not talk about her anymore i don't think about maybe she's a russian bot maybe we just have
01:01:21.400
been successfully trolled well only a russian bot could troll the uh op-ed section of the new york times
01:01:28.140
so yeah it's yeah it's just a matter of time yeah okay well not to put too fine a point on it but
01:01:35.160
the goal of this post-mortem amita was not to be mean-spirited but to try to extract whatever
01:01:43.100
lessons can be found in yet another amazing installment of social media in the midst of the
01:01:50.980
deathy situation we call life right oh that's a good title for a book kind of a cheesy book but one i
01:01:58.320
wish i could write and make a fortune on because it sounds like something i would buy
01:02:01.320
okay so before we move on to uh even more superficial topics okay then twitter so what is
01:02:11.420
your understanding of of your prognosis now and just i mean one of the points of your article was
01:02:18.420
the way in which this covid pandemic has compounded the the hassle among other things of just dealing
01:02:26.100
with ongoing cancer treatment give us you know a picture of your current situation and
01:02:32.360
these are some of the implications of of the pandemic that people aren't really thinking about
01:02:37.980
i mean we think about elective procedures not being done but an elective procedure is a cancer scan or
01:02:45.640
even in some cases a cancer surgery bring us up to the moment with your your health well part of
01:02:51.520
having cancer at this stage is that you have to get a lot of pet ct scans because you have to find
01:02:57.840
out if the treatment you're on is working and if it has the cancer stable or if the cancer is growing
01:03:06.460
during in the presence of this treatment meaning you have to get a different treatment you have to
01:03:10.300
change your treatment so and then because of very long story with these other cancer treatments i've
01:03:16.740
had in the past they have given me certain other problems that have to be checked a lot that i
01:03:21.660
gained because i was treated for cancer so i should have really had a pet ct scan probably a month ago
01:03:29.380
and i will have it this month on the 27th because they're really trying to push anything they can do
01:03:36.580
i don't know really in the beginning if it was because they felt that the hospitals out here in
01:03:41.680
california would be overrun as they are have been in new york city or if they just wanted patients
01:03:48.160
that have these underlying conditions to stay out of hospitals that are so full of every kind of thing
01:03:53.020
floating around could be covet as well as much as possible i don't know but at a certain point you have
01:03:59.080
to get your scans so i'll go there and then i have to go a lot to get my infusions so with that it's
01:04:07.280
just a lot of like they call you first and ask you the questions and then you're out in the about
01:04:11.280
symptoms do you have any of the symptoms no and i would love to have a test for this thing because
01:04:16.540
i wonder if in early january i might have kind of been exposed to it because i was a bit sick in early
01:04:21.080
january and so was my husband and he'd just come back from new york but you know there's the beautiful
01:04:25.780
perfect available tests are not as perfectly beautifully available as we've been led to believe but anyways then
01:04:31.200
they take your temperature and then finally they let you in to the infusion space and you're kind of
01:04:37.140
like ah i've made it you know to this horrible place where i get treated for cancer but everyone
01:04:42.060
there is really nice so there's a lot of just things you have to jump over and i'm not parking
01:04:46.900
down in the basement because i don't want to have more people in my car but i want to go down there to
01:04:51.220
give a tip to the guys i know so it's all it's all it's all a little bit challenging i'll admit but a lot
01:04:57.580
of people are in a lot worse a lot worse situations so and are you still taking herceptin or is it
01:05:03.520
has it moved on to other drugs it's still well now i take herceptin because obviously it failed me
01:05:10.660
because i'd been on herceptin every three weeks for 11 years so it it started to i started to the
01:05:16.440
cancer assert itself more strongly against it but i still get it in combination with this other drug
01:05:22.020
that's now in the armamentarium called progetta and then with an injection of huge horse horse
01:05:28.980
sized injections of something else every three weeks the first one that the thing is i'll be on
01:05:33.720
treatment the rest of my life until or unless something better comes along or more definitively
01:05:39.640
curative so the first one that i tried was doing a good job but i i just couldn't imagine living my
01:05:45.600
life on it i was just too sick from it right i mean i was nowhere near as sick as i was on actually
01:05:50.140
being on chemo and the new it was a chemo but it was this smart bomb kind of chemo where it goes
01:05:56.320
through your body and it only explodes inside a cancer cell which is wonderful but it does still
01:06:01.380
so you don't lose your hair or anything but it does still leave left me really tired and kind of sick
01:06:05.760
so then i switched up to this new treatment so there's a lot there's a lot in the armamentarium and
01:06:12.400
it just goes to show when you throw a whole lot of money and a whole lot of science at one very
01:06:18.240
particular problem you start getting some answers to it you know it's science is real i guess
01:06:26.020
well needless to say um vast numbers of people love you who haven't even met you because your
01:06:33.420
spirit comes through so clearly in your voice both on the page and in conversation so i think not
01:06:39.320
meeting me it's probably inducive to this could be the sweet spot yeah just just enough caitlin
01:06:45.700
it's my next book your next book okay so pivoting to um in some ways these are equally existential
01:06:54.360
topics because we're talking about the fate of global civilization here when we're talking about
01:06:59.380
politics at the moment but in our last podcast you and i said that i think we called that the new
01:07:05.140
times but in general journalism would have to deal with the tar read
01:07:08.760
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