The Mikhaila Peterson Podcast - February 22, 2023


Opposing Views: Assisted Dying – Mercy or Murder? | Dr. Ellen Wiebe & Dr. Mark Pickering EP 182


Episode Stats


Length

1 hour and 8 minutes

Words per minute

152.41

Word count

10,410

Sentence count

463

Harmful content

Misogyny

1

sentences flagged


Transcript

Transcript generated with Whisper (turbo).
Misogyny classifications generated with MilaNLProc/bert-base-uncased-ear-misogyny .
00:00:00.000 You're not saying, no, no, don't feel like that, you know, you're not a burden, we will look after you whatever it takes, suddenly you change it, you say, maybe you're right, maybe you are a burden, what does it do for suicide prevention in mentally ill people to change from saying, whatever happens, we will always support you to, in certain circumstances, we will actually help to kill you, that's crazy.
00:00:22.200 That must be a hard practice to be in, no?
00:00:25.960 This is the best work I've ever done.
00:00:28.320 It is such an honor to be part of somebody's death.
00:00:33.180 Really?
00:00:33.900 Really.
00:00:42.080 Dr. Ellen Wiebe, welcome to my podcast.
00:00:45.140 Thank you for having me.
00:00:47.000 Thank you very much for joining me.
00:00:49.700 Before we get started, can you give me a brief background about who you are and what it is you do?
00:00:55.640 I have been a family doctor for many, many, many years.
00:00:59.320 And I had a full service comic practice doing everything from cradle to grave for a long time.
00:01:09.180 And then I concentrated on women's health, which primarily was abortion and contraception.
00:01:18.140 And since our law changed in 2016, I have been providing medically assisting deaths.
00:01:27.500 So now I don't do any family practice anymore, and I just do the women's health and assisted dying.
00:01:39.200 Okay.
00:01:39.480 And I'm a professor at the university, and I do lots of research, publications and teaching.
00:01:48.140 and that sort of thing. Okay, great. You said when the law changed in 2016. So what was that law?
00:01:56.380 So this is the medical assistance and dying law in Canada. And that came about because of a
00:02:04.040 constitutional court case. The court decided that Canadians had the constitutional right
00:02:11.160 to have an assistive death. And in the particular situation of having a grievous and irremediable
00:02:22.800 condition that caused unbearable suffering, and they had to be voluntary. Then that was the court
00:02:31.520 decision. And then the law came in, which added some safeguards that there had to be two clinicians
00:02:38.340 that agreed that somebody was eligible under the law,
00:02:44.240 that there had to be a waiting period
00:02:47.760 and a witness for the consent, et cetera.
00:02:53.240 Then that law was amended in 2021
00:02:58.500 from another court case,
00:03:00.340 which said that some of the safeguards
00:03:04.280 did not follow the Constitution
00:03:06.380 and were therefore struck down.
00:03:11.020 And the main one was that the natural death be reasonably foreseeable.
00:03:18.180 Now, I know that your audience are in different countries,
00:03:22.300 so I just want to compare a little bit.
00:03:25.120 In the U.S., 20% of Americans live in states where they do have assisted dying as well.
00:03:30.980 All of those states, except Montana, have the rule that your expected death be within six months.
00:03:40.840 And ours was that their natural death must be reasonably foreseeable.
00:03:47.320 And then that was struck down.
00:03:49.140 So that the idea that, you know, somebody who could expect to suffer unbearably for the next 30 years also had the right to an assisted death.
00:04:02.940 In Australia, most of the states have assisted dying and their laws are either six months or 12 months.
00:04:14.700 So that the expected death must be within six to 12 months.
00:04:19.140 And in all cases, the issue of an assisted death means that a clinician, a doctor, or a nurse practitioner can prescribe a medication that would end the death or actually give the medication.
00:04:38.680 We have, in addition to our laws, we have a number of regulations and standards and guidelines that we have to follow.
00:04:46.880 Well, these are through our province, through our professional organization, by the people who license us.
00:04:57.580 So, we're covering elections coming from every direction.
00:04:59.740 And so, in Canada, it's rare that anybody gets the medication to drink and do it themselves because our regulations are that we must be there.
00:05:14.160 Right. And that I have to have the intravenous medication ready in case something goes wrong.
00:05:27.460 So in Europe, this is called euthanasia when a doctor actually injects the medication,
00:05:35.180 actually gives the medication to a patient. But in Canada, we don't use the word euthanasia
00:05:41.200 except for involuntary, like that's what we use for our pets when nice them.
00:05:49.440 Here we call it assisted dying and in some places it's called assisted suicide and especially
00:05:57.380 in a place like Switzerland or the US where they're required to ingest and or to do it
00:06:08.080 themselves. And so that's sort of how the terminology goes.
00:06:15.200 Okay. So in Switzerland, so you just said they're required to do it themselves. So you
00:06:20.380 don't have a doctor administering it. They have to administer it?
00:06:24.060 Yes. And so one clinic uses IVs, but the person must actually push the button.
00:06:34.420 that allows the variety fluid to come through.
00:06:39.840 And another clinic generally gives people something to drink.
00:06:45.260 Hey guys, if you enjoy a few glasses of wine once a week
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00:06:55.220 It helps you break down acetaldehyde,
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00:07:17.880 if that's something that bugs you. Obviously, don't abuse alcohol, but if you're into biohacking
00:07:22.560 and you don't have a hangover pill, you're doing it wrong. You could say you're doing biohacking
00:07:27.320 wrong if you drink anything, but hey, life is life. Sometimes people want to have a few drinks.
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00:07:58.980 the rest of this episode. How does that work for people who have, you know, end of life diseases
00:08:05.400 that stop them from moving? Exactly. Exactly. And that's why most of Canada and most of the
00:08:17.720 Australian state allow for intravenous if somebody has trouble. In the Benelux countries, that's
00:08:26.540 Netherlands, Belgium, and Luxembourg. Almost everybody uses IV for the same reason the
00:08:33.100 Canadians do. It's that it's faster, it works quickly, it doesn't taste bad, and the doctors
00:08:41.180 are expected to be there. Yeah. That must be a hard practice to be in, no?
00:08:49.580 Well, you know, I've been a doctor for 47 years now, and I've loved my career.
00:08:55.500 I delivered over a thousand babies, and I took care of families, as I said, from cradle to grave, which I love.
00:09:04.720 But I can tell you that this is the best work I've ever done.
00:09:09.760 Really? It's not strict. And why is that?
00:09:14.000 Why is that?
00:09:15.000 It is such an honor to be part of somebody's death, to be able to offer them this control over the end of their lives.
00:09:29.700 It's such an honor to have these conversations with people.
00:09:39.600 Why have you decided to die now?
00:09:43.280 What makes your life worth living?
00:09:45.940 What do you want to get done before you die?
00:09:49.840 How would you like your death to look?
00:09:52.100 And I'm, you know, I'm privileged to be there for the last goodbyes between spouses, you know, together for 15 years.
00:10:01.940 I'm, as a doctor, there were times when I couldn't end somebody's suffering.
00:10:13.280 whether I had to helplessly watch somebody suffer at the end of life.
00:10:19.820 You know, I studied palliative care and I did my best
00:10:22.380 and got the people who knew more than I did to help me.
00:10:27.680 But there was still so much suffering at the end of life.
00:10:31.900 And now I can actually end the suffering.
00:10:36.460 And it's just for people who want it.
00:10:40.320 I mean, we only work with people who are asking for it.
00:10:47.400 And I ask at the very last minute, are you sure this is what you want to do today now?
00:10:52.320 And so, yeah.
00:10:55.400 Yeah.
00:10:56.600 I can see.
00:10:58.220 I didn't realize.
00:10:59.120 So did Canada not have this option prior to 2016?
00:11:02.900 Correct.
00:11:04.120 Okay.
00:11:04.640 Okay.
00:11:04.920 I had a grandmother who passed away from Alzheimer's, and it was just brutal.
00:11:11.980 It was just brutal.
00:11:13.060 And I had a great uncle who had ALS.
00:11:16.980 And again, brutal, super traumatizing for everybody around them.
00:11:22.440 And so I can definitely see where this can stop a lot of suffering that nobody wants to go through or bring on their family.
00:11:31.460 um what what's the who's the average person you think you see who asks for this we know
00:11:38.880 but we got statistics you know we got national statistics and i keep my own as well um so we
00:11:46.400 know that um the vast majority have cancer and uh they're at the average age of 70
00:11:53.480 so it's it's typically people who are white rich well-educated used to being in charge of their
00:12:04.320 lives you know we get so many you know retired doctors and lawyers and business people the kind
00:12:11.620 of people are used to yeah being in control and when they find out that they've got their stage
00:12:18.140 for cancer or their ALS.
00:12:20.820 In some countries, it's called motor neurone disease instead of ALS.
00:12:25.200 When they find out that they've got that diagnosis
00:12:28.020 and they see what's coming up, they call them.
00:12:35.780 And that's been the most important change, I think, for our country
00:12:40.560 is that now when you get that, I mean, we're all dying, right?
00:12:46.080 of the 100% of us. And when you get that awful diagnosis, and it's happened since 2016 to three
00:12:55.540 of my close friends, where they got the diagnosis, stage four cancer, there's no more treatment
00:13:02.320 available, nothing you can do. They know writing me before they do anything else. They know that
00:13:09.260 they have me available. And so they call me up and ask about it because they know that when I do,
00:13:16.080 And it just gives them more peace going forward.
00:13:20.780 I mean, each of my friends went ahead and took treatments and took whatever was offered.
00:13:28.720 One has had her mate and the other two are still doing cancer treatments.
00:13:35.180 But they know that they're going to die of their cancer soon.
00:13:39.820 And they know that they've got control.
00:13:41.940 like something not a lot but some control and that's just made such a difference you know now
00:13:50.000 before you face this you know you're going to have some control over the end of your life
00:13:56.460 if you want it yeah yeah interesting okay um what about the scenario when people are having
00:14:06.260 mental illness and the mental illness is painful enough yeah what happens to those people
00:14:11.240 Exactly. So our law currently excludes anybody for whom the sole underlying medical condition is middle illness.
00:14:22.820 This happened with the amendment in 2021.
00:14:31.140 They put in the restriction.
00:14:33.000 They gave it a sunset clause, which meant that it expired in two years, which was next month.
00:14:39.340 But then I just gave an extension for a year.
00:14:43.020 So in 2024, March 17, people will be eligible for psychiatric suffering when that is their sole underlying medical condition is the psychiatric condition.
00:14:59.040 But we have lots of experience now with concurrent disorders.
00:15:03.700 I mean, lots of people who have both physical and mental illness.
00:15:06.700 And when I first was dealing with this, you know, I was a bit of a struggle because in all my practice, if somebody said they wanted to die, I would think, oh, they were depressed.
00:15:22.640 And now I was listening to people who had perfectly logical reasons to say I want to die because they had ALS and they had a line in the sand.
00:15:37.980 I'm not going past this line in how much I'm willing to degenerate and become dependent on others.
00:15:46.340 And so I had to figure out, okay, okay, okay, so what do we know about depression and how it can interfere with people's ability to think and make decisions?
00:15:57.380 And of course, I wasn't alone. I had all my colleagues and psychiatrists had to consult.
00:16:04.420 And so seven years later, I have, and 47 years of being a doctor, I have a lot of experience with people who have concurrent disorders, serious mental illness plus a physical condition that would make them eligible for an assisted death.
00:16:24.000 And in my research, we are looking now at what's been happening since 2021 when we could help people with the chronic conditions, the ones where they still had a long life expectancy and expectation of suffering for maybe a decade or more.
00:16:45.340 And so we have discovered in our research that a majority of these people have serious mental illness.
00:16:55.300 Now, as you can imagine, if you are suffering unbearably from some physical condition for decades, would that make you have mental distress?
00:17:07.600 Yes.
00:17:08.960 Yes, definitely.
00:17:10.440 So a lot of it is just secondary.
00:17:12.640 But there also was a mental illness that's just concurrent and the more serious ones, you know, schizoaffective and bipolar with psychosis and personality disorders, the severe ones and so on.
00:17:34.520 So we have now had quite a bit of experience with concurrent mental disorders where people are suffering terribly from a mental condition in addition to physical conditions.
00:17:48.180 And so I am facing 2024 with the confidence that we can do our assessments well and help people after that time.
00:18:11.300 The assessments that we need to do are, first of all, for capacity.
00:18:16.420 can this person make this decision reasonably? If you're actively psychotic, you can't. I mean,
00:18:24.660 but if you're delusional about certain things, you can. Like for example, I had a patient who was
00:18:31.620 dying of a really nasty bone cancer or in awful pain. Now she was delusional. She was totally
00:18:39.300 The FBI were watching her in that nursing home, which seemed to be a lot.
00:18:45.260 But she was not delusional about the fact that she had pain caused by bone cancer.
00:18:51.940 She knew precisely.
00:18:53.600 So she did have capacity to make the decision that she didn't want to suffer that pain anymore.
00:19:01.300 And the fact that she still believed that the FBI were after her wasn't interfering with her ability to make that decision.
00:19:12.380 So even somebody who has some delusions can make medical decisions.
00:19:18.640 It's more complicated to figure it all out, right?
00:19:22.240 But it's possible.
00:19:24.280 And, you know, I mean, I have a family member with schizophrenia, and there are, in the last 17 years since he was diagnosed, there were four occasions on which his rights were taken away.
00:19:40.860 he was hospitalized against his will and treated against his will. But all of the rest of the time,
00:19:47.820 he has the same rights as any other citizen. He can direct his own care. He can do everything.
00:19:53.980 And he doesn't always make wise decisions that his parents agree with. But he has true rights.
00:20:03.500 And that's also what I realize when I'm talking to my patients who have the Concord Disorders.
00:20:15.620 Okay.
00:20:16.280 Okay.
00:20:16.700 That makes sense.
00:20:18.440 Let me see.
00:20:19.540 I've got a list of questions that I try to stick to.
00:20:22.900 Okay.
00:20:23.560 Yeah.
00:20:24.140 What are the steps patients need to go through with a physician to be allowed to get medically
00:20:28.560 assisted?
00:20:29.820 What is it called in Canada?
00:20:31.100 Medically assisted death?
00:20:32.080 um medical assistance and dying uh yeah okay uh it's um um and even the u.s medical aid in dying
00:20:40.800 which is both uh um the acronym is made for both countries uh so um the uh first thing is a request
00:20:51.740 and uh we have in canada we've got um a coordinating centers in every province
00:20:57.820 and so
00:21:00.060 you can go through your MAID
00:21:01.740 coordinating center
00:21:02.760 look it up on the internet and find it
00:21:06.060 or you know through your doctor
00:21:08.160 or through somebody
00:21:09.940 you know and
00:21:11.540 the MAID coordinating office 1.00
00:21:14.140 will then find you
00:21:15.700 a doctor or nurse
00:21:17.820 practitioner to do the assessment
00:21:19.440 some of them come
00:21:22.080 referred from other doctors
00:21:23.760 just the way doctors refer to each
00:21:26.020 other
00:21:26.240 The family knows who I am and refers their patient to me, and some just find me because
00:21:33.860 I have a website and want people to be able to access this if they don't know other ways
00:21:43.100 of doing it.
00:21:44.820 And so each province has a request forms that people fill in, and these by law must
00:21:52.920 be witnessed by an independent person.
00:21:55.200 An independent person means somebody who is not providing the need, like I can't do it,
00:22:02.140 and who is not in your will.
00:22:03.960 So my staff can do it because they're not directly providing anything for these patients
00:22:13.400 and they aren't in the patient's will.
00:22:16.660 So there's sort of the request and then two clinician assessments.
00:22:23.100 And these assessments are, they can be done by video, or I do lots by Zoom, or in person.
00:22:30.100 And we have to make sure that they fit all the criteria.
00:22:36.540 So they have to be able to make a voluntary request, be capable of making such a request.
00:22:41.920 They have to have a grievous and irremediable condition that's causing unbearable suffering.
00:22:48.700 And we have to decide whether their natural death is reasonably foreseeable in Canada
00:22:54.400 because we have to separate them into track one or track two.
00:22:58.340 Track one has no wait list.
00:23:00.200 So these are our cancer patients and heart failure patients who have a natural death
00:23:07.960 that's reasonably foreseeable.
00:23:09.720 They can choose their date whenever they want.
00:23:14.360 And anybody whose natural death is not reasonably foreseeable has a three-month waiting period.
00:23:20.740 And during that time, we must make sure that they have explored everything that is available in terms of dealing with symptoms generally that had their condition for a decade or more, and they have explored everything.
00:23:42.320 But sometimes we can figure out, oh, well, there is a new treatment.
00:23:46.660 And, you know, the last time you saw a specialist in your area was four years ago.
00:23:51.860 And it wasn't available then.
00:23:54.100 So it's our job to figure that out, to see whether there is something that they've missed during that three-month period.
00:24:04.620 Okay, that makes sense.
00:24:06.040 And do you know if that's similar in the U.S. and in Switzerland?
00:24:10.180 Yeah. So in the U.S., some of the states have waiting periods, but they're short. They're like two weeks. And none of them have formic illness allowed. It's all their expected death, six months or 12 months.
00:24:32.560 And how long, I mean, you probably know this, but how long has that, I didn't know that that was available because you said it wasn't available in Canada before 2016. So there have been states in America that have had medically assisted dying for illnesses that were going to end lives for a while?
00:24:49.820 Over 20 years. Oregon got their law over 20 years ago. Washington state was next. California was the same time as we were in 2016. So, yeah. So, as I said, 20% of the population of the U.S. are in states where they do have the right to inter-sisting DACA.
00:25:13.940 Hmm. Okay. And was Switzerland one of the first places to have this? Because I'd heard of Switzerland for a while.
00:25:19.600 In Switzerland, what happened was all the countries, most Western countries, had a law
00:25:27.460 against suicide where people actually got put in jail if they'd failed a suicide attempt.
00:25:34.880 Yeah.
00:25:35.880 And those laws were all rescinded a long time ago.
00:25:40.840 And back in the 1940s when Switzerland rescinded their suicide law so they'd no longer put
00:25:47.320 people in jail if they failed their suicide attempt then they had um in there it said that
00:25:55.740 and uh anybody who assisted a person to suicide for monetary gain um was like but people who
00:26:07.360 didn't we were not and so it meant that anybody not if they didn't have to be a doctor um could
00:26:15.880 assist somebody to suicide as long as they weren't benefiting out of their will or something
00:26:23.420 like that.
00:26:25.700 And it took a while before there were actually clinicians who were providing this.
00:26:33.960 They also do not have a residency requirement.
00:26:38.760 Each of the American states and the Australian states and Canada have residency requirements,
00:26:46.860 so we can't take foreigners.
00:26:50.100 But Switzerland doesn't.
00:26:51.580 So they're the one place that people can travel to to get an assisted death.
00:26:59.320 Okay.
00:27:01.320 That must have been why I'd heard of that.
00:27:03.200 Exactly.
00:27:04.200 Because people could travel there.
00:27:05.200 Interesting.
00:27:06.200 Okay.
00:27:07.200 doctors or medical associations, do they ever recommend assisted death? Or does this have to
00:27:14.240 be brought up by the patient? That's all the same thing. So the important thing is what we call a
00:27:21.300 serious illness conversation. So when somebody has about a fatal illness, and if the doctor is
00:27:29.800 is having that conversation and you know this is what's happening this your heart failure has
00:27:38.380 gotten to the point where um we can only just manage it and area your life expectancy is now
00:27:46.480 short uh then the important thing is to make sure they know their options and that would be you know
00:27:56.000 what kind of palliative chair? How can we make you more comfortable available in our area? Is
00:28:02.720 there a hospice, a residential hospice, for example, home care hospice, where people will
00:28:09.440 come into your home and help take care of you as you die? And, you know, what is available for you?
00:28:17.140 And at that point, they should know that there is medically assisted death available,
00:28:24.160 because that's part of how you would choose.
00:28:28.220 You might say, okay, well, I don't want to burden my family
00:28:33.620 when I'm no longer strong enough to make it to the toilet and so on.
00:28:38.560 So I would go into a residential hospice at that point
00:28:43.400 rather than expect my family to be taking care of me.
00:28:47.900 And then, you know, you have to actually know that one particular residential hospice won't allow an assisted dying there.
00:29:01.160 And you need to choose one over the other.
00:29:04.620 So you need to know these things.
00:29:06.140 You need to know what's available and how best to plan the end of your life, whether you want a natural death or an assisted death.
00:29:15.160 So that's really part of informed consent for the whole end-of-life care.
00:29:25.040 And in an ideal situation, that's part of the serious illness conversation by somebody.
00:29:35.140 And, you know, it's not at the time of diagnosis.
00:29:38.680 Usually, I told you that my friends who got their horrible diagnoses in the last seven years, that was one of their first thoughts was, I've got to figure this bad stuff out and make sure I have an exit if I get to a point where I can't stand it anymore.
00:29:56.360 But it's not necessarily that you say to somebody, I'm sorry, your tests show that the cancer has spread, the chemo is not working anymore.
00:30:05.920 and we need to talk about providing the best possible comfort for you
00:30:14.080 as you base the end of your life.
00:30:16.940 That may not be the right day.
00:30:18.600 Maybe it'll be a few weeks later, but it'll be sometime.
00:30:24.740 Yeah, that's probably too much information on that day, I would say.
00:30:29.320 Do you think there are any cases in which assisted death
00:30:32.480 should not be given as an option?
00:30:35.920 Um, do you mean diagnoses or?
00:30:39.660 Yeah, diagnoses.
00:30:41.120 No, I don't think that a diagnosis itself takes all your rights away because that's what you're talking about, right?
00:30:50.520 So, as I said, I mean, just because you have a diagnosis of schizophrenia does not mean you have all your rights taken away for the rest of your life.
00:30:58.640 No, you have rights taken away.
00:31:01.460 Sometimes when you're acutely psychotic, you cannot make decisions for yourself.
00:31:07.040 And illegally, your rights will be taken away from you.
00:31:10.180 But once the acute psychosis is over, then you, like Marnie's stepson, you have total right over your own body and more.
00:31:22.640 Do you have any comments for people who might be skeptical about this procedure or who might not understand it or something?
00:31:35.560 Yeah, yeah. Just this is a basic right that people should have and luckily do in many places to help control their own dying.
00:31:50.360 And so it's important that we have the safeguards in our law and in our standards and guidelines and so on to make sure that vulnerable people are not pressured.
00:32:08.380 But we have those and I'm really confident that everywhere I've investigated and know about, like the European countries and Australia and U.S. and Canada, people take this very seriously and do their assessments carefully and are following the safeguards in our law.
00:32:35.460 Okay. Dr. Ellen Wiebe, thank you very much for coming on. You said you had a website. Could you tell everybody what the website is if people want to find out more?
00:32:47.820 Hemlock Aid.
00:32:49.720 Hemlock Aid. Okay. Well, thank you very much for coming on. That was very informative.
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00:33:41.880 Mark Pickering, welcome to my podcast.
00:33:44.500 Thank you very much. Great to be here.
00:33:46.460 Before we jump in, can you give a brief background about who you are and what it is you do?
00:33:50.620 Great. So my name is Dr. Mark Pickering. I'm a GP, family practitioner by background. Most of the clinical work I do is in prisons and other secure environments. And I lead the Christian Medical Fellowship in the UK. So that's an organization of just under 5,000 doctors, nurses, midwives and students.
00:34:10.340 So we try to help them live out their faith as Christians in whatever that means.
00:34:16.080 And part of what we do is looking at public policy and bioethics issues.
00:34:19.940 So things at the beginning and end of life are very important in that.
00:34:22.980 So assisted dying is really important because there's a lot of pressure to change the law all around the British Isles.
00:34:31.020 Okay. Okay. Well, let's delve into that a little bit.
00:34:35.060 What is medically assisted dying?
00:34:37.320 It really depends who you ask, because many people who talk about it, they are not always
00:34:44.920 clear on their definitions. And when you ask the public what they think, they're often not clear
00:34:48.560 either. To say that you're assisting someone who's dying, that implies that they're actually dying.
00:34:55.060 So the classic situation would be somebody who's terminally ill, maybe they've got cancer
00:35:00.040 or motor neuron disease, and they're approaching the end stage of their life.
00:35:04.320 and you might say they're in the dying process or the final weeks of life and then they might
00:35:10.200 be suffering with pain or shortness of breath or other symptoms that are difficult to control and
00:35:14.920 they might ask a doctor to give them medication or prescribe medication for them to take
00:35:20.780 so that they can die in a more peaceful fashion than they might do otherwise but there's so many
00:35:27.520 things wrapped up in that that need unpacking that often don't get unpacked so like I say
00:35:32.160 to call it assisted dying, many people, particularly in Canada, for instance, who access
00:35:38.280 MAID, medical aid in dying, they're not actually dying. They might be chronically ill, they might
00:35:43.300 be disabled. In some places, it might be a young baby who's very disabled, it might be somebody
00:35:50.420 with a mental disorder. And so you may have a degree of suffering, but they may not be dying.
00:35:56.500 And so that causes a lot of confusion, because often if you ask people in the public, what do
00:36:00.100 understand by assisted dying they might think that that is the care that you get when you go into a
00:36:05.220 hospice for palliative care um for someone who is dying you are resisting them by treating their
00:36:11.540 symptoms that would be a valid um way to talk but it's not what most people understand or very often
00:36:19.140 there are complicated ethical decisions towards the end of life for instance if you make a do
00:36:24.660 not resuscitate decision when someone is perhaps approaching the end of their life and you think,
00:36:32.180 okay, there's no point in doing cardiopulmonary resuscitation, CPR, if their heart and lungs stop
00:36:38.340 because it's not going to work. That may be very appropriate just to say, we're going to make that
00:36:43.140 decision that that would not be appropriate. Or you might say, you know, you're having chemotherapy
00:36:48.100 for your cancer, but it's clearly not working. So we think we should stop that treatment. The
00:36:52.900 treatment is futile, it's not doing you any good. Many people think that that is assisted dying
00:36:59.140 because then you're stopping a treatment which they may see as keeping them alive. So, there's
00:37:03.460 a whole range of different things and it's incredibly important to get your definitions
00:37:08.020 right, especially when they change across different countries and jurisdictions and conversations.
00:37:15.460 Currently, what's legal in the UK?
00:37:18.500 Yeah, so in the UK or in the British Isles, you've got a number of different jurisdictions.
00:37:23.360 So there's England and Wales, there's Scotland, there's Jersey, there's the Isle of Man, and
00:37:28.420 then there's the Republic of Ireland.
00:37:30.440 And all of those different jurisdictions have got campaigns to change the law in different
00:37:35.600 ways.
00:37:36.600 So it's illegal to end the life of a patient.
00:37:40.840 So as a doctor, you can't do something that will actively end their life.
00:37:45.540 And if they say to you, please give me a medication so that I can end my life, you can't do that.
00:37:50.780 So it's illegal to encourage or assist a suicide.
00:37:54.960 It's not illegal to commit suicide.
00:37:57.160 It used to be.
00:37:58.460 But many people who try to take their own lives often have mental health challenges.
00:38:04.460 And so if you tried to take your own life because of a mental health problem and you didn't succeed and then you ended up in hospital,
00:38:11.380 Or, you know, what's the point in making you feel worse by then prosecuting you for something?
00:38:16.600 But you still can't encourage or assist a suicide.
00:38:19.680 And you can't actually do what we call euthanasia by a doctor or clinician giving a drug to you to end your life.
00:38:27.560 But you can do all of those other things around the end of life.
00:38:31.640 You can make good decisions about is this particular procedure or treatment that you have been having, is that actually benefiting you?
00:38:40.900 or do you want to decide yourself to stop it or do we decide as a clinical team that it's not
00:38:46.940 benefiting you and various things around that so we call that withholding and withdrawing of
00:38:52.000 treatment and that can be perfectly appropriate. So this is completely different than what's
00:38:57.340 happening in Canada now? Yes absolutely so my understanding of the law in Canada is that it
00:39:03.020 changed in I think 2016 where euthanasia first became legal or medical aid in dying as it's
00:39:10.420 called their medical assistance in dying, sorry. And when the Canadian law first changed,
00:39:16.980 well, you can have either euthanasia or assisted suicide. Euthanasia is basically when the clinician
00:39:23.480 or someone else gives the medication to the person, usually through injection to end their life,
00:39:29.200 whereas assisted suicide is where the clinician prescribes it and then provides it to the person,
00:39:35.680 but then the person drinks it or takes the tablets themselves. So it's a question of who
00:39:41.140 does the final act. And I understand that the vast, vast majority in Canada are euthanasia
00:39:46.340 where the clinician will end the life of the patient. Usually that's with their express
00:39:50.980 request and permission, but in some situations, particularly in countries like Belgium and
00:39:56.020 Holland, sometimes it happens without the patient making a request. But in Canada, where it started
00:40:02.540 in 2016 um there was a clause that said the person's death had to be reasonably foreseeable
00:40:08.860 so in many ways that's like terminal illness um how we would say many of the proposed laws
00:40:14.380 in the british isles often put a a stop on it to say you've got to be within six months of
00:40:20.460 death from a terminal illness it's very hard to actually guess how long someone has left
00:40:25.580 and how many months they would live otherwise um but that's basically what many laws say so that
00:40:31.420 originally was there in the canadian law but because there was no time put it then actually
00:40:36.300 that got quite elastic and so some people whose deaths from their condition may have taken five
00:40:41.660 or ten years were being seen as eligible for made and therefore um in 2019 there was a court case in
00:40:49.260 quebec where two disabled people said look this isn't fair we're not chronically or we're not
00:40:54.700 terminally ill our deaths are not reasonably foreseeable but we are suffering we want to have
00:40:59.820 access to MAID as well so they were granted that access and then that led to a change in the law
00:41:05.820 across Canada so that now your death does not have to be reasonably foreseeable for many reasons of
00:41:12.940 suffering or chronic illness you can request that and now there's a proposal to extend it further
00:41:19.900 to purely mental conditions I know that's been paused but certainly that's still in the plans
00:41:25.980 for Canada as well. So it really has changed very rapidly over just six or seven years in Canada.
00:41:32.220 Okay. And what are the downsides if the point of this is to relieve people's suffering?
00:41:37.700 Yeah. So the downsides are largely, there's several of those. So a person's suffering may
00:41:45.300 be temporary. So if someone has cancer, they have pain, they're in a lot of pain. And for instance,
00:41:52.800 maybe their family physician is treating them their gp um and they may not be able to relieve
00:41:58.160 that pain that person may think i can't live like this i want to have um euthanasia um but if they
00:42:04.560 had access to a palliative care specialist who is an expert in dealing with this kind of symptom
00:42:10.080 control they may be able to get much better pain relief symptom control and feel a lot better
00:42:16.240 there may be other reasons why their distress may be short-lived it may be that actually
00:42:21.680 the suffering that they're going through is largely psychological and emotional more about
00:42:26.020 the meaning of what's happening to them it may be a spiritual cause what will happen to me
00:42:30.040 after death there are so many different reasons for that and somebody may not have had good
00:42:35.300 psychiatric care they may not have had good palliative care or symptom control
00:42:39.340 and and so there's all of these different reasons there and if we has if we change a law to make it
00:42:47.740 first of all legal then people may access that who didn't necessarily need to have that because
00:42:53.340 like i said about in canada the the law has expanded quite rapidly the numbers have grown
00:42:58.440 rapidly the societal expectations have changed quite rapidly so whereas it may have been
00:43:05.340 legalized to begin with so that just a small cases would be accessible to euthanasia then that often
00:43:14.220 changes greatly. Sometimes we like to think about it, say, if you compare it with speed
00:43:19.900 limits on the road, most countries have speed limits. And that's generally sensible. It
00:43:26.960 keeps people safe. And yet we've all been in situations where we think, I wish there
00:43:30.840 wasn't a speed limit here. We might be late for work. We might be late for the airport.
00:43:35.520 We might be late for the cinema. Somebody might be ill. We might be having to get them
00:43:40.060 to the hospital and so it's you can understand the argument of saying i wish that if i you know
00:43:47.220 i would like to have the choice not to have a speed limit you know if i feel that i need to
00:43:52.360 go as fast as i want to then you know i should be able to do that and you understand that but then
00:43:57.960 when you start trying to frame a law around that to say well like you can only you know speed 20
00:44:05.100 miles an hour above the speed limit you can only do it if the if the flight that you're trying to
00:44:10.420 get to is really important you can only do it if it's a medical emergency you know all of these
00:44:15.500 things get really complicated but then what you actually do is you change society so that people
00:44:20.200 just think actually speed limits are a bad thing we should be able to go as fast as we can and then
00:44:25.240 what becomes my choice then becomes a duty that society has to provide for me and then actually
00:44:33.040 you change the expectations and the implications for others. You get more road traffic accidents,
00:44:37.760 more deaths of innocent people. And that's quite a good illustration of what can happen
00:44:42.120 because we now see in many countries where the law has been changed, that investment in palliative
00:44:49.640 care often doesn't keep pace with other countries because people think, well, why should we
00:44:53.820 spend all this time trying to control your symptoms? Let's just give you euthanasia.
00:44:58.720 why don't you opt for that? If you're an elderly person with chronic illnesses and infirmities,
00:45:04.760 you may be using up the money that you'd like to give to your children and grandchildren to
00:45:09.700 buy a house with, and you might be using it up in social care costs. And so then the expectation
00:45:15.180 comes on you. Aren't you being a bit selfish by staying alive and eating up that money?
00:45:20.620 You know, yes, you may be suffering a bit, but actually it's hard for your family to care for
00:45:26.280 you surely you should be asking for that and even if people are not saying that to you then there's
00:45:32.960 there's definitely an expectation that comes on to people because when we when people talk about
00:45:38.280 safeguards with changing the law they'll often say oh you know our law has got lots of safeguards
00:45:43.320 around it so that nobody will request it who doesn't really want it that sounds fine when
00:45:48.520 you're looking to change the law but what's my what seems like a safeguard on one side of the
00:45:54.080 law change. When you look at it from the other side, after you've changed the law, then people
00:45:57.940 start talking about barriers to patient access. So most countries will say, we'll only do it for
00:46:04.220 people who are terminally ill. And that sounds great. But then like in Canada, you do that,
00:46:09.620 you change people's expectations. And then some people, a few people who may be disabled or
00:46:14.720 chronically ill will say, well, why don't we have access to that? We're suffering for a long time
00:46:19.900 too? Don't you care about us? And then suddenly you have to widen it because you say, well,
00:46:25.040 this isn't fair. We have to provide this for everyone. As soon as you say that medically
00:46:29.680 assisted death, medically provided death is something that's good that you should be able
00:46:34.200 to provide, then on what grounds can you limit it and not give it to other people?
00:46:39.700 So is your opinion that it's just a slippery slope and we shouldn't go in that direction at
00:46:44.280 all? Or should it be available for people, say, with motor neuron disease that are definitely
00:46:49.360 suffering and definitely going to die relatively soon yeah i think those are exactly the kind of
00:46:54.720 questions to ask so that the term slippery slope some people love it some people hate it um you
00:47:01.020 know it can give you the idea that like if you're on skis if you push off the top of the slope you'll
00:47:05.060 go straight the way down to the bottom it's cut it's really hard to stop that's not always a great
00:47:10.700 analogy but what we often prefer to talk about is incremental extension that once you've crossed
00:47:15.900 that first barrier you say okay terminal illness great then what about people with chronic illness
00:47:22.700 and disability then you say only people over 18 well what if you're 16 and mature or uh you know
00:47:29.580 then you say only with mental capacity well what if you've got early onset dementia you we know
00:47:34.860 that you don't want to you know advance dementia so even though you don't quite qualify maybe we
00:47:40.860 should extend it that way so um it's very hard to to keep a law at one place and never to change it
00:47:47.740 virtually every jurisdiction that's changed the law has extended it further in different ways
00:47:55.420 yeah that makes sense i think one of the things i'm concerned at least about in canada is
00:48:00.860 and i used to be in chronic pain from arthritis and i had a number of surgeries for that and
00:48:06.140 getting access to pain medication. There was a three-month waiting period when I was 17. Three
00:48:12.640 months when you're in chronic pain, severe chronic pain is a very, very long time. And so if the
00:48:19.060 access to ending things, if it doesn't seem like you have some sort of future is easier than the
00:48:24.400 access to pain medication and the healthcare system in Canada too, is like, even though they
00:48:29.360 think it's world-class, it is not a world-class healthcare system. So that's concerning. But I
00:48:36.120 can also see where people are coming from having watched people die of dementia slowly and
00:48:41.200 painfully. I can see. Do you know what's happened in Switzerland? Because Switzerland's had more
00:48:48.620 access to medically assisted death for a while, right? And even people from out of Switzerland
00:48:54.380 can go and travel there for it. Do you know what the stats look like there? Like, is it more old
00:48:59.580 people? Yeah. So Switzerland is an unusual place. They have had provision for assisted dying,
00:49:06.920 I think, since the 1930s. And so some people in the UK who want to access that, but they can't
00:49:12.720 do it in the UK, they will sometimes travel to Switzerland. And usually that's assisted suicide
00:49:19.220 where the patient drinks the medication or takes the tablets. Sometimes it can be euthanasia.
00:49:24.400 They're quite broad in the categories that they will allow.
00:49:29.500 Many of the providers in Switzerland will only provide it to Swiss citizens.
00:49:34.140 But there are a couple of organizations who will allow people from other countries to go there.
00:49:39.120 And some people look at that and say, you know, it's just been part of Swiss culture for years.
00:49:43.360 You know, we shouldn't worry about it.
00:49:44.740 You know, they haven't started killing everybody.
00:49:47.180 It hasn't really extended massively.
00:49:49.380 And I think there is a certain argument for that.
00:49:51.440 But then you look at another country like Canada and you think, why has it gone so far, so fast, so quickly and really changing the culture very fast? And people will sometimes point to Oregon in the USA and say, well, they've had it since 1997. The law hasn't changed much. You know, that's the kind of law we want.
00:50:10.200 but you can't promise that when you ask for Oregon
00:50:13.840 that you won't get Canada
00:50:14.980 and you can't say, well, I like Switzerland
00:50:17.560 you might get Belgium
00:50:18.920 because attitudes to so many things
00:50:22.260 are different in different cultures
00:50:23.840 and things will have different effects
00:50:25.360 Switzerland is a very wealthy country
00:50:27.840 people have a very high standard of living
00:50:30.880 and I haven't looked at the stats in great detail there
00:50:35.860 but I think you'll have a lot less social deprivation
00:50:39.260 and you'll have a lot less people who can't get access to the health care that they need.
00:50:45.400 Whereas, very sadly, we're hearing in Canada some horrific stories of people who,
00:50:50.380 you know, they just want good housing. They just want good medical care or social care.
00:50:56.740 And actually, they've got a constitutional right to be killed by the state. They can access MAID
00:51:01.820 very quickly, but they can't access good housing. Like you said about the pain medication,
00:51:09.720 you may not be able to get the health care that will actually reduce your suffering.
00:51:14.040 And so that's a terrible situation to be in. We may say that doesn't happen very often,
00:51:19.260 but it is happening in some situations. And if we're saying, well, you've got a right
00:51:26.040 to access euthanasia, but you don't have a right to access prompt social and medical care,
00:51:31.820 That's setting up a whole problem for us that I think we should be incredibly worried about,
00:51:37.200 especially when you've got a cost of living crisis, you've got a mental health crisis,
00:51:43.040 particularly after COVID. There's so many factors that should lead us to be very careful indeed.
00:51:49.480 Can you go into more detail about what's going on in Belgium? You said you can be euthanized
00:51:55.540 against your will in some cases. Yeah, so in Belgium and Holland have both had
00:52:01.720 euthanasia for some years
00:52:04.540 Holland came first and then Belgium
00:52:06.700 I think was about 20 years ago
00:52:08.500 and they have seen that steady
00:52:10.720 expansion of the criteria
00:52:12.840 so that to begin with in Belgium
00:52:14.600 again it was just for terminally ill people
00:52:16.400 and now it's expanded gradually
00:52:18.620 people have become more comfortable with it
00:52:20.400 and then people
00:52:22.600 are less
00:52:24.900 willing to actually
00:52:26.340 go through the criteria
00:52:27.880 properly so that doctors become
00:52:30.480 less careful about checking whether someone actually fulfills the criteria. If you go
00:52:35.440 to one doctor and they say you don't fulfill them, then you can go to another doctor who
00:52:38.820 says you do. And we have what you call doctor shopping, when people will go around and find
00:52:43.780 a doctor that they know is positive about euthanasia, ask them, and then of course,
00:52:48.160 they'll help with them.
00:52:51.460 So in most situations, euthanasia would be what you call voluntary, when someone goes
00:52:58.140 through different procedures, questions, and screening, things where you'd make sure that
00:53:08.060 they really want to have the euthanasia, that they've actually looked at their options,
00:53:12.520 maybe experienced palliative care or psychiatric care.
00:53:16.240 They've maybe seen two doctors, so you can do that quite well, but in many situations
00:53:21.080 you don't.
00:53:22.360 and that would be voluntary euthanasia if you know for certain that the patient has requested it.
00:53:29.620 You can have, on the other hand, non-voluntary euthanasia when you just don't ask them.
00:53:35.320 If, for instance, you had a patient who had advanced dementia,
00:53:39.440 they may have said something in the past,
00:53:41.640 you know, if I ever get like this, I don't want to live,
00:53:43.900 you know, I would want to have euthanasia if I ever got severe dementia.
00:53:47.680 The trouble is when people actually get to that point,
00:53:50.040 you don't know if their opinion then is the same as it would have been when they were healthy.
00:53:54.220 Many people look differently on life when they actually are disabled or suffering in some ways
00:54:00.140 because the life that they didn't expect to have is still better than no life at all.
00:54:06.040 But if someone's in advanced dementia and you think out of compassion they would want us to
00:54:10.700 end their life, you can't get consent from them, but you might decide that that's the way to do it.
00:54:16.000 Or you may just think, actually, it's too much difficulty to fill out the forms, and
00:54:21.500 we're seeing some really, really bad cases in Belgium, I think, when people are just
00:54:26.780 not going through the procedures because it's become more normal.
00:54:31.240 So some elderly people, I understand, will go into hospital in Belgium actually trying
00:54:35.500 to be really clear, do not give me euthanasia, because they're worried that actually somebody
00:54:39.740 might make that decision for them.
00:54:41.440 And then you've got involuntary euthanasia when the patient may not even want it, but
00:54:46.340 you decided it's the right thing for them.
00:54:48.260 Now, thankfully there are very few cases like that, but there was a case recently, I forget
00:54:53.760 whether it was Holland or Belgium, that a patient had said previously that they would
00:54:58.760 like euthanasia if their dementia got to a certain stage.
00:55:03.180 It did progress.
00:55:04.180 Then they said to them, would you like to have it?
00:55:06.080 And they said, no.
00:55:07.080 Oh, that's a bit odd.
00:55:08.500 Some days they'd say yes.
00:55:09.500 Some days they'd say no.
00:55:10.500 Of course, it's dementia. It's hard to judge their mental capacity. It may fluctuate.
00:55:15.660 And so then the family and the clinical team decided, OK, we're going to go ahead with it because that's what they said before.
00:55:22.340 We'll give them some medication to make them drowsy. Then we'll give them further medication to end their life.
00:55:27.720 The patient was actually refusing, fighting it off.
00:55:31.440 And actually then someone held them down while the doctor euthanized them because they believed that that's what the patient would have wanted.
00:55:39.560 And there was a criminal investigation there.
00:55:42.920 Nobody was charged.
00:55:44.720 And, you know, it's very rare in these situations, even when people don't follow the rules, it's very rare that anyone gets into trouble.
00:55:53.920 Have you heard in Canada about organ donation and euthanasia?
00:56:00.020 What's going on with that?
00:56:00.900 Yeah, so my understanding is that quite a number of organs for transplant are now coming from
00:56:09.840 patients with euthanasia. Clearly, if you have a medically controlled euthanasia, you can have
00:56:16.480 everything set up to go. It may take place within a hospital. You could have an esthetist and
00:56:21.400 transplant surgeons on hand so that the quality of the organs that you get is coming is actually
00:56:28.300 very good you can have it very quickly between euthanasia and then organ harvesting now um and i
00:56:34.680 understand that organs coming from euthanasia cases that the majority of those in the world
00:56:40.200 are coming from canada now you can look at that and you say well you know isn't that a good thing
00:56:46.260 because you know this patient wants to die but they want to contribute to help someone else live
00:56:51.960 isn't that altruistic and yes it might be but then goodness what what sort of um conflict is
00:56:59.660 that putting someone in to say well actually you know maybe i don't want to live or maybe my maybe
00:57:05.420 i'm a burden on my family maybe i should ask for euthanasia oh and actually i could then give my
00:57:11.280 organs to someone else who may benefit from them so there's an emotional pressure um that really
00:57:16.820 shouldn't be there. We would quite reasonably be very upset to think that executed prisoners
00:57:25.740 in China might be having their organs removed without their consent. But actually, if it's
00:57:31.440 coming from euthanasia patients who might be influenced by that decision, then that could
00:57:37.720 be a problem indeed. It doesn't have to be a massive problem, but you can see there's
00:57:42.580 a real danger of that complicating the decision that the patient makes.
00:57:48.660 That could easily complicate it if you're suffering from a mental disorder that's making
00:57:54.120 you feel like a burden, like you said. So you already feel like a burden. You've had this
00:57:58.220 mental disorder for 20 years. You're not getting the proper care. And hey, you can go out,
00:58:04.400 stop your suffering and save some people. Yeah, absolutely. And mental illness is a
00:58:10.660 massive problem within this situation. So I mentioned before that when the Canadian law
00:58:17.940 changed a year or two ago to remove that reasonably foreseeable death criterion,
00:58:25.720 then they put a clause in to say that in, I think, 2023, so coming up this year,
00:58:31.640 then it would then open out to people who purely had mental health conditions as well.
00:58:36.520 Now, there's been a lot of resistance to that more recently, I understand, and I think
00:58:43.780 that's been paused, but I don't think there's been any intention to remove it.
00:58:49.340 And I listened to a Canadian documentary recently by, I think it's a senator who was a psychiatrist
00:58:55.420 who was the one who pushed for that clause to be inserted, and it was really quite frightening
00:59:00.960 to hear him saying you know it's terribly it's terribly stigmatizing to people with mental
00:59:05.520 mental illness you know they should have access to what everyone else does you know if it's good
00:59:10.080 enough for other people mentally ill people should be able to get it as well and there's a terrifying
00:59:14.640 cold logic to that as well but then you think goodness if your only problem is a severe depression
00:59:22.400 or schizophrenia or a personality disorder if you are suffering mentally then you know how will that
00:59:32.140 affect your decision making power you know how do we know that um some more time on treatment or
00:59:38.480 some different treatment might actually make things a lot better and and i look after a lot
00:59:44.400 of people with schizophrenia personality disorders in my clinical work and many of them have chronic
00:59:50.600 suicidal thinking. So an emotionally unstable personality disorder that often goes along
00:59:55.940 with self-harm, that could be present for 10, 20, 30, 40 years, and that person will
01:00:02.900 every day feel like killing themselves. They may sometimes self-harm, they may sometimes
01:00:08.360 attempt suicide, but that doesn't go away. There's no pill that you can give to necessarily
01:00:15.400 remove that with psychotherapy. You may be able to help it significantly, help it to
01:00:20.440 control it but once you say that a person in that situation should be eligible to say
01:00:25.960 that's enough i you know i want to have euthanasia as well okay but you know how much
01:00:33.400 are you um opening that up to other people whose suffering may be short-lived they may simply not
01:00:40.080 have had good um psychiatric care there may be so much else they can do and then when people feel
01:00:45.460 a burden, which is a massive reason why people opt for euthanasia, then you're not saying,
01:00:52.480 no, no, don't feel like that, you know, you're not a burden, we will look after you, whatever
01:00:55.840 it takes. Suddenly you change it. You say, maybe you're right, maybe you are a burden,
01:01:00.660 maybe this would be a good thing. That's how you feel we agree with you. What does it do
01:01:05.360 for suicide prevention in mentally ill people or mentally suffering people to change from
01:01:12.640 saying whatever happens we will always support you to in certain circumstances we will actually
01:01:18.240 help to kill you that's crazy yeah so yeah it it's crazy what are you working on specifically
01:01:28.800 to kind of push back against this well i think one of the things in the british isles um is is
01:01:34.160 really helping to show people the logical consequences of what they are proposing so
01:01:40.560 here in the british isles or in the uk that the main campaigning organization is called dignity
01:01:46.240 and dying and they're very focused on their campaign goals they say we only want um assisted
01:01:52.240 suicide not euthanasia and we only want it for adults who are mentally competent so they they
01:01:59.920 can make that decision genuinely that they're terminally ill and that they have less than six
01:02:05.760 months to live and that's very tight campaign they've changed those campaign
01:02:10.620 goals over the years because they've realized they've had many decades of
01:02:13.920 being unsuccessful in changing the law and so now they're saying okay we're
01:02:17.820 going to focus it down on this there's much more chance of getting a law passed
01:02:21.480 through Parliament and there is because when you put it that way you say look
01:02:24.360 this is just a small change just for a small number of people at the end of
01:02:28.020 their life you know why would you force them to suffer but the trouble is there
01:02:32.900 are other organizations who don't think they go far enough. Here in the UK, there's another
01:02:38.440 group called My Death, My Decision that looks to Canadian euthanasia and says, that's great.
01:02:43.620 That's what we want to have in the UK. So Dignity and Dying, I think, are being very
01:02:50.920 naive or possibly something worse than that when they say, don't worry, if we get our
01:02:57.920 law, then it won't extend further. Because you know there are people already campaigning
01:03:01.960 to to push it further um you know we look and see in canada how how fast things have gone and why
01:03:09.160 you know why would we think that things wouldn't go like that you know we're a similar country in
01:03:13.320 many ways in terms of our culture and i think it's foolish to just believe that that wouldn't happen
01:03:19.320 here even if it didn't go half as far or half as fast that would really worry me um and also when
01:03:26.920 When we're looking at how the law can change in a country, it's really important to see, well, in the different jurisdictions around you, what are the rules that they're trying to put across?
01:03:40.460 So in Jersey, for instance, they do what's called the citizen's jury, which is when you ask people from the population what they think should happen.
01:03:47.280 and the general public are generally more liberal or more lax in the rules that they would have than
01:03:53.980 politicians are because politicians at least have the professional responsibility to think
01:04:00.120 what about the unintended consequences whereas most individual people just think well i'd want
01:04:05.160 that for me or for my loved one and it's not their job to think well what could go wrong with this
01:04:10.220 whereas for a politician you hope it is so dignity and dying were campaigning heavily
01:04:15.260 in jersey to change the law and it's quite possible they may change the law now we're
01:04:20.800 looking for waiting for some draft uh a draft bill to their parliament to look at but the
01:04:26.880 citizens jury said we don't want just want assisted suicide we want euthanasia as well we don't just
01:04:31.700 want it for terminals we want it for chronic illness and disability and some of the people
01:04:37.520 in there in there said we want it for those under 18 those uh with dementia that sort of thing not
01:04:42.960 all of those got through but it's a significantly wider law than dignity and dying actually
01:04:47.680 were asking for so we often say be careful what you wish for okay mark i think that answers all
01:04:56.000 my questions um i didn't know that about belgium so that's freaky it is um yeah yeah do you want
01:05:05.120 to talk just a little bit about how faith impacts on that sure sure go ahead so i mean it's one of
01:05:11.260 the common responses that people who are campaigning to change a law will say to someone
01:05:15.840 like me, they say, oh, it's just because you're religious, you know, you believe in the sanctity
01:05:19.900 of life. I don't believe in that. So, you know, your reasons don't matter. But then
01:05:25.440 on the other hand, you have lots of religious people who say, well, you know, Jesus taught
01:05:29.600 us compassion, you know, therefore we should relieve suffering. So the former Archbishop
01:05:34.920 of Canterbury in the UK, George Carey, who's now in the House of Lords, he's a supporter
01:05:39.980 of assisted dying but really interestingly he campaigns for dignity and dying who have that
01:05:47.020 very tightly focused campaign but the actual situations the cases that changed his mind were
01:05:52.860 people who had chronic disability and chronic illness they were not terminally ill so he even
01:05:58.540 admits that the people that changed his mind the situations are not the ones that he's campaigning
01:06:03.740 for. So, you know, of course he's going to, if he gets his law that he wants a tightly conscripted
01:06:11.120 law, he's still going to want to have compassion on those other people who are going further. So
01:06:16.320 you see that law change has got the seeds of its own expansion within it. But it's not about
01:06:22.080 whether you have a faith, it's about how you apply that. And for many people, you know, the way I
01:06:29.120 look at it is it's about making sure that vulnerable people are not put at risk by law
01:06:34.620 that um that the autonomy of one group of people doesn't impact on the safety of others and these
01:06:41.500 are just generic things you don't have to have a faith to understand that there are plenty of
01:06:45.900 humanists and atheists who oppose to it as well so i think we must be really careful before writing
01:06:51.640 off somebody just because they have you know one faith or another view or the wrong kind of view
01:06:57.260 very often the the reasons behind um opposition to law change they are the same across all faiths
01:07:05.400 and none okay i'm actually glad you brought that up because yesterday i was like okay mark pickering
01:07:10.880 um and then you're you're part of it and i'm a christian but i didn't want the christian
01:07:17.000 perspective on this because i was like so so many people will write that off right it's like
01:07:21.920 but so i'm very glad you covered that um and i think everything you spoke about makes sense
01:07:28.440 so thank you again is there anywhere i can lead people to online where they can learn more about
01:07:34.300 this yeah absolutely so within the uk we've got care not killing.org.uk so that's an organization
01:07:40.740 that i speak on behalf of uh for clinicians and health care workers there's a a linked group
01:07:47.400 called ourdutyofcare.org.uk. And then for those working in parliament, dyingwell.co.uk,
01:07:57.080 which is a group of parliamentarians in Westminster, particularly who are opposed
01:08:02.840 to changing the law. So all of those have got great information on the links to other places.
01:08:09.880 I'd really encourage people to go and have a look at those.
01:08:13.800 Okay. Thank you very much for joining us.
01:08:15.880 Michaela, you're very welcome. Thank you.